I took myself off Cimzia 2 years ago because I was so ill despite my rehumy nurse insisting it couldn't be caused by Cimzia. I couldn't breathe, I couldn't dress without gasping for breathe. Then the skin on my fingers starting splitting, peeling and bleeding. When I refused anymore Cimzia I then started steroids that had been prescribed for my asthma. Within days my breathing was substantially improved and my fingers healed. I'm now on toczilimab which is good for my RD but my fingers are once again a mess. If I go into my handbag I come out with multiple splits on my fingers bleeding. It's like your body has to remind you that you have RD. I can't lift a cup of use knives and forks because my fingers are so sore. I have been on 5 mg steroids for 12 months to control it. I finally came off the steroids and now my fingers are a mess once again.
I'm sorry I'm just whinging just get so damn fed up. Rant over so now I will go back onto the steroids.