My Rheumy just called to let me know the neurologist has (finally) said my brain splots are nothing to do with Humira but doesn't want me to go back on it as I wasn't well at all when I took it - huge flare up and other side effects like fainting. I have a fridge full of the stuff (wonder if I could sell it down the pub, jk.)
So next step he wants me on Infiximab, I'll give it a go, got to take something and I'm running out of options! I'll also stay on the Pred more long term and the dose has to increase again if my eye starts getting worse - it is already playing up now I'm down to 10mg.
Not sure what to do with my sharps bucket and excess Humira, I'm supposed to be squeezed in for a chest x-ray next week and nurse visit, if they can get me in, so will ask then. Once that is gone there will be more room for cheese