Finally a step forward!: My Rheumy just called to let... - NRAS

NRAS

37,229 members46,073 posts

Finally a step forward!

Dogrose profile image
5 Replies

My Rheumy just called to let me know the neurologist has (finally) said my brain splots are nothing to do with Humira but doesn't want me to go back on it as I wasn't well at all when I took it - huge flare up and other side effects like fainting. I have a fridge full of the stuff (wonder if I could sell it down the pub, jk.)

So next step he wants me on Infiximab, I'll give it a go, got to take something and I'm running out of options! I'll also stay on the Pred more long term and the dose has to increase again if my eye starts getting worse - it is already playing up now I'm down to 10mg.

Not sure what to do with my sharps bucket and excess Humira, I'm supposed to be squeezed in for a chest x-ray next week and nurse visit, if they can get me in, so will ask then. Once that is gone there will be more room for cheese :-D

XXX

Written by
Dogrose profile image
Dogrose
To view profiles and participate in discussions please or .
Read more about...
5 Replies
sylvi profile image
sylvi

If it had been valium you would have made a lot of money.xxx

helixhelix profile image
helixhelix

I gather people with RA in Greece have run out of meds.... But glad the splots on your brain don't sound as if they are worrying people.

Sailaway profile image
Sailaway

I'm sorry it didn't work for you, isn't it frustrating?

On the drugs and sharps bin, when I stopped it I rang the people who delivered it to stop them bringing any more and they arranged to come and pick up everything I had left. I think you might also be able to hand them in to a local pharmacy or the hospital if that's easier.

2plus2 profile image
2plus2

Hi homecare at home took my unused Enbrel away when I had it stopped plus the sharps bin. They have to destroy it all, such a shame as I had only just had a delivery. I have decided to go with humira rather than infiximab, but seeing you mention fainting I'm now not sure.

Dogrose profile image
Dogrose in reply to2plus2

Don't take any notice of any of my side effects - I have all the rare ones! I'm a bit of a fainter anyway, I nearly fainted walking to work a while back, long after I stopped the Humira, just because I was in so much pain and had taken loads of codeine. xxx

Not what you're looking for?

You may also like...

Another step towards anti-tnfs.

I had a hospital visit with the rheumy nurse yesterday, I wasn't sure at all what was going to...
Dogrose profile image

Access to biologics in different CCG

Hi all! It has been a stressful few months selling-up and looking for somewhere to live on the...

One month on.........................Humira

Morning all, hope you are all doing good. I know I know that's to much to ask but we have to dream...
Sue8 profile image

One step forward 2 steps back

I took myself off Cimzia 2 years ago because I was so ill despite my rehumy nurse insisting it...
shazbat profile image

Well, I’m starting humira in the next 3-4 week

Well, I’m starting humira in the next 3-4 weeks so I count that as a success and the next step on...
forislava profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.