Good evening everyone. Well would you believe i am downstairs still instead of being in be. Well here is the reason. I have been for a Lidocaine infusion.It is used to ease pain which i have had a lot of. They have said it won't get rid of all of it,but it will ease it. Anyway here i am sitting down here in my pjs. It gave me a very hot face which the dr told me was normal. I have to say when i went in i was in a terrible state having had a really rough day. Tears before we left here. I have to say by the time it all went into my system i was starting to feel a whole lot more cheerful and feeling in a lot less pain. I couldn't believe i was feeling brighter. Tonight i feel really good compared to what i was like this this morning. The pain is a lot easier tonight i am happy to say. It should last a few months and when it wears off i have to see my dr. and ask to be sent back to the pain management clinic and they will give me another one. I am not saying it will work for everyone,but it is helping me tonight. I will keep you all updated on how it is going.....xxxxx
Lidocaine infusion.....: Good evening everyone. Well... - NRAS
Lidocaine infusion.....
Wow--- that's really good news. Fingers crossed it lasts ☺xx
Sylvi ,that's good news Alison aka summer32
Wow Sylvie. Sounds good. Enjoy your time with less pain. Hopefully your holiday will more enjoyable now.
Carolyn xxx
Ps Nice to hear from Summer again.
Sounds good Sylvi. Glad it has made you feel a lot better. Love the photo. x
I'm pleased that it's given you some welcome relief Sylvi. With a fair wind it'll last for when you go on your hols, really hope so but don't be tempted to be doing too much even so. x
I'm so delighted for you I could hug you 
made my night Sylvi! .......well that and maybe a bit of John snow!! (Games of thrones) xx
Thank you all very much. I am always stiff and sore in the mornings,but i don't think(i am being cautious here) i am as stiff this morning. We will see how time goes on,but it is hope for most of us if it works on me.I know it might not help everyone,but it is good news if nothing else. Love you all and welcome back Alison.xxxxxx
Great news Sylvi - hope you enjoy a good few months off pain at last. X
That's great! 😊
Great news. To be honest, I haven't been well with other things recently and missed some items on here. However, just seen this and this sounds perfect. I didn't even know that such a thing existed! I have been to the pain clinic and was given lidocaine patches, which worked really well on my feet as I have EM. However, I have awful trouble with things like plasters not sticking to me and that's what happened with the patches, within half an hour they fell off! They left all the sticky stuff on my feet and it was a nightmare to get rid of. As I have RA it would seem the perfect answer to my pain from both things. It was a few years ago and this was never offered to me. Is it something new? I will certainly ask my doctor about it, now I know how successful it has been to you.
Being in less pain means i want to do more and i forget i have cfs and fibro and i am feeling worn out. I have been ordered by my lovely hubby to rest. So i have got a bottle of soft drink and am sitting here with you enjoying it so i am resting aren't i.xxxx
I know exactly what you mean Sylvi, I tend to do the same, on a better day I do far more than I should and then suffer for it later! I have always been this way and it's hard to change after all these years! Plus, I am on my own and in a wheelchair and so unfortunately, I don't have a choice to do things and rest as much as I should. I have been waiting for carers to come to me for a long time and just keep being told that they haven't got any company that can come to me at the moment! My new MP is looking into this for me, it's a disgrace and my GP is on my side and his words were "This is really a shocking situation".
Damn straight its a disgrace. How on earth are you managing on your own in a wheelchair as well. I should hope your mp is on the case. Hugs darling. Xxx
The answer to how on earth am I managing on my own in a wheelchair the truth is I am not really! I am thoroughly exhausted, even the simplest of things are so difficult these days. I am fortunate that I have wonderful next door neighbours, who bring me in a hot meal every evening and are there to help me when I need it. However, they are both nearly 80 years old and have their own health problems, I feel very guilty that they are helping me. I have just written again to my MPs secretary and she hasn't heard a thing from my social worker since she wrote early on in the week. So, she is going to get onto her today to see what on earth is going on. I have even offered to pay even though I shouldn't have to, but still nothing. It was exactly the same last year with my husband who had terminal cancer we couldn't get carers for him, even offering to pay. No wonder I am as bad as I am months of looking after him on my own when he was in a wheelchair.
You might want to consider going to the papers as that seems to be the only way you will get the help you need, they will soon shift their butts then as they don't like the bad publicity. Xxx
Late to the post, hope you got a good nights sleep and that your feeling better today and your infusion is working its magic. Take care xx
I had weird dreams darling, but I have managed a lot today, I also went up and down the stairs a couple of times today without too much trouble. I am a bit sore this afternoon because I forgot I have these others diseas3s that slow me down. Hugs darling. Xxx
Hi Sylvi, I haven't reported it to the papers, but I have told the BBC spotlight news, but they didn't take up putting it on the local news or even respond to me! Probably the best place is my local newspaper the Cornish Guardian they are more likely to take it up than the nationals.
Tocilizumab first infusion
