Trying to cope

[Oxopinkyblue]

I'm new to all of this I coped for 2 years before I was diagnosed firstly I had vit d defiancy but the pain never went I can almost cope with the pain but emotional I'm finding it hard I feel I can't move on with my life I keep waiting for things I read about on the internet to happen

[Hidden]

i know just how you feel I have been living in hope it will all just go a way I wish for my old life back ,i come on here and have a good moan and some one always gives me a bit of upliftment to get through so you have come to the rite place.

[Oxopinkyblue]

Thanks for answering I think I'm in the stage of why me ? And can't cope with it I feel so low even though I have a wonderful support around me just keep expecting the worse to happen ! Can't go on like this

[Jacki08 in reply to Oxopinkyblue]

I am sure I can speak for every one that feeling low and scared is normal. I was diagnosed in September this year and, like you , waited for all the horrid things to happen that I had read about on the Internet. Luckily, they haven't happened yet. !!! It might sound strange but I actually feel better having got a diagnosis for the pain I had been suffering with for the past 4 years. I've been on medication, managing to cope with the side effects, for about 6 weeks now and already feeling some benefits. I got great help from people on here so ask anything and someone will answer. You can private message anyone or just openly on here☺x

[allanah]

Hi it's so hard I think, coping with daily things whilst tired and in pain is very ... Challenging!!

Emotionally I was a wreck but I got through and if you want I can tell you how.

I saw a rheumatologist quickly and started steroids and dmards that day. Patience is definately a virtue as the drugs often have three months before they decide whether they are working. One number that will help you is your inflammation level or another is the disease activity score.(DAS) you can ask for these numbers and you will see if you numbers go down the treatment is starting to help. Then join NRAS call, their helpline no us on the main website nras.org.co.uk. They are wonderful and you can call the helpline whenever you want. Also they have lots of advice on recently diagnosed area and loads of info on the drugs.

I also asked my gp to see a counsellor. I had loads of issues over not bring able to climb mountains and not getting into work and she really supported me.

I feel for you it's so shocking at the beginning but once , even if it's trial and error for a while) you get the right meds you will feel so much better.

Welcome on here and keep chatting and asking questions as they come up, sending gentle hugs xx

[Oxopinkyblue in reply to allanah]

Thank you so much I'm so glad I found this site as it can be quite lonely

[nomoreheels]

Oh, oxopinkyblue, please don't ever feel lonely. We're always here if you do feel that way but with good family support, even though that's brilliant, they can't know just how you feel as other people with RD can. That's where this site is so great, someone will have been just where you are now. I was one of the fortunate ones who has a quick diagnosis & on DMARDs ,steroids etc about a month in total from the start of problems. Didn't even know what it was but thankfully my GP did & received full diagnosis a fortnight later. I can't imagine how you coped for 2 years so pleased you have your diagnosis finally & hopefully your meds will soon start reaching their potential. If you have any questions fire away, don't worry, we're likely to have heard it all before.

Have you looked through the NRAS website when you've been searching the internet? nras.uk.org, It's a good reliable one.

[Oxopinkyblue in reply to nomoreheels]

I will have a look at that website thankfull for all the lovely comments have made me feel not so alone xx