I seem to have forgotten what a good night's sleep is. Impossible without strong painkillers to zonk me out totally which makes me feel like hell in the mornings and leave me thinking that dementia is setting in as head will not function at all. Alongside this, there is the blasted stiffness just about everywhere and in places where I thought it would be impossible to get stiff, and the all over pain. I tend to set the alarm an hour earlier than needed so that I have enough time to 'move'!!!!! The house resounds to my 'ohs', 'ouches' and use of various words which are unprintable here.
How do you all cope with lack of sleep? It seems to me to be a vicious circle; no sleep equals more pain and stiffness. I have a methotrexate injection every week, and had my last Humira two weeks ago. This is now stopping because it doesn't seem to be helping and I'm having my first rituximab infusion on Friday. Steroids helped the physical symptoms of RA but made me rather depressed so they have been stopped. Being in bed tends to aggravate the situation rather than alleviating it - so does sitting as I usually need a shove from behind to get my hips to move.
Just can't win against this noxious disease!!!
Cheers Everyone and keep smiling (if possible).