Apologies for this post but along with the heat and my out of control joints I'm grumpy.
I heard back from the rheumatology nurses today about my new plan as I can't tolerate sulfasalazine, new plan of attack is methotrexate.
I know ideally no one would really want to take this drug but needs must and all, well in conversation I spoke to my mum about it she asked about side effects etc and she got really angry at me for wanting to take it. I am 46 so way past being told what to do 😁
She made me feel really crappy, no i don't want my hair to fall out (already have little bit of hair loss due to thyroid issue), no I don't want to get liver damage, no I don't want any of this but the need to be able to actually live my life without pain is greater.
I understand how she feels if any of my 2 daughters said to me they had to take this i would be sad but I wouldn't blame them which I felt my mum was doing to me.
I also had a chat to my 2 oldest friends last night and they just don't understand how much this affects my life; They think I can pop a pill and be ok. We were talking about getting older and one friend joked saying she would be needing a walking stick soon and i had a total sense of humour failure as I could probably do with one now.
I know i am in a dip right now, in between medications and desperate to find some relief, the sulfasalazine worked for a few days and now my pain and stiffness is returning and I am upset and angry about it.
I don't know if I need to see the consultant again before they can prescribe MTX, the leaflet said i would need a lung x-ray ?
Just taking 1 tablet a week instead of 1 per day has me worried about if I don't get on with it will I feel sick for the whole week?
Sorry I've just had a total brain fart here! I just had to get it out !
Thanks for listening x