Hi, was wondering if anyone can help me. I've not been well for 5yrs nearly 6 now (ever since I had my son). Rheumy suspects undifferentiated connective tissue disease. I think it's more likely to be RA or polymyalgia arthritis. All my bloods are negative for anything although I was low in vit d, frolic acid, iron and b12 at 1 point, all corrected now.
My questions are how to control the pain, what meds are you on and how do they work for you, what's the frequency in flares and pain.
I take ibroprufen and cocodomal but still in unbearable pain, should I be taking ibroprufen on a daily schedule to prevent pain as currently I wait till I'm in pain and take it.
Has anyone found any diets, supplements that make a difference. I've kept a food diary but can't find any links. I have the odd few good days here and there but there is no pattern I can see.
He did prescribe me plaquenil which I took but when over the phone I got my blood results which were all clear I decided it wasn't worth the risk and took myself off it. I have since tried to get another prescription from my g.p as its worse now but he said no, need to see rheumy again as it's a serous drug and I need liver function tests etc which I was never given originally and it scared me even more.
Also is it normal for your joints to click nearly everyone u move and not to display redness. My fingers get fat but not what I would call hot red swelling. More like fluid retention. My throat also gets so regularly sore and painful. My gp felt throat the other day and said my thyroid feels ok and unless it's massive it wouldn't cause pain.
Any advice would be appreciated as im so tired or being tired and sick of being in agony. I'm also very scared to take medications, I've been convincing myself for last few years that i have something that just needs antibiotics or a surgery and it would be cured. I'm just finally facing up to the fact that it's something I can't stop.