Electrical shock...

[mohikan22]

Hi all. I'm asking fellow RA sufferers.....I am at present having flare ups daily due to my coming off of prednisone. ..... in my ankles predominantly recently... I'm feeling small "electrical shock" feelings.. constant...like trapped nerves...Most uncomfortable and "twinges" at times like a quick surge...anybody else get those?? Thanks.

[Hidden]

Yes, I get them sometimes & they're horrible. I think they only really affect me at night. If they were more persistent I'd be onto my rheumy ASAP as nobody should have to put up with that more than just occasionally.

[mohikan22 in reply to Hidden]

I'm glad it's not just me nor in my head! You do begin to wonder sometimes....is really an aggravating thing to go through

[Sailaway]

Yes I get those, at the moment in my shoulder and hips, and at other times I've had them in my ankles and knees.

[ShellyWelly]

I've been getting electric shock, stinging/tingly pain for the last two days and am really freaked out. I'm still waiting for a diagnosis and was worried that this kind of pain pointed to something neurological, but it's only a recent thing and very minor compared to the rest of my joint pain but still very painful whilst they last.

I'm sorry to hear you are getting this, but it sounds from your description like the same thing i'm getting.

[Hidden]

I am also in a flare up and going down on prednisone. I have RA and fibromyalgia. My feet, ankles and legs feel like they are burning. My bed sheets makes it more uncomfortable. I think mine may be more fibro than RA. However the bones hurt from ankle to toes. It doesn't feel electrical just bad burning. Do you have fibromyalgia? A pain pill takes the edge off for me.

[mohikan22 in reply to Hidden]

Good morning

[cathie in reply to Hidden]

Yes I'm having a flare too, searing pain and feeling like burning. I came off pred about a month ago and won't want to go back on it as it affected my diabetes badly.

[Hidden in reply to cathie]

Hi Cathie! I know prednisone is so bad for our bodies and worse for those with diabetes. Do you take something else I it's place? I work good for pain, but nasty drug!

[cathie in reply to Hidden]

No I haven't found anything to replace it. Am learning to live with the pain together with ibuprofen and paracetamol. Not brilliant but I am hoping that the rheumy will get off her backside and prescribe me a biologic that works.

I tend to spread the word about pred because it really surprised me how much it affected me and I wanted people to know and be careful. Its an illusory magic potion.

[Hidden in reply to cathie]

I keep trying to get off it. As soon as I get down to 2 1/2 I flare up. I'm still in a flare up but I'm going down on prednisone anyway Today I'm going down to 10 mg from 15mg. I hope they find the right med for you. Soon!

[cathie in reply to Hidden]

Good luck on tapering off pred. Slow but sure I suppose. And thanks for the good wishes, C

[Hidden]

Good morning to you! It's 2 AM in Florida. I imagine you just wok up. I'm hoping I can fall asleep. Pain pill just started to kick in.

[mohikan22]

Alas I have been on and off sleep all night even with tramadol (x2)

[mohikan22]

Ooh sorry abby11 I didn't answer the question ..I do t have fibro.i suffer RA

[B-ham-m]

Heyy i have them before and when im asleep they wake me up its hydrocodine whats doing it to me tho doctor told me cuz its strong medcation does it i no its not same as yours but hopefully u find this helpfull

[sarahxxxx]

Yes I get them too! I have RA and MPA vasculitis and am on 20mg prednisolone and get the same feelings in my legs. I swear by my amitriptyline at night which reduces the pain and twitches.

[Smiler53]

Hi, Yes, I get them too. Searing pains down my shin bones and around my knees. I get them even when I don't have a flare. They make me yelp at times, horrible feeling and very painful. My rheumy didn't take much interest when I told him. Hope you get some relief soon.

[mohikan22]

Thanks for the input all. Very insightful.

[d-creasey]

Yes Mohikan I get the feelings you describe in my toes and fingers. It stopped when I was taking Mthx but since coming of it the feelings have come back and are there all the time. D.

[Monti1366]

I am new to this blog.. I have Lupus and Lyme Disease. I have the surges that make my fingers jump as I type and in my joints so they cause terrible restlessness throughout my body. I take 40mgs Baclafon at night. I am on 7mgs of Prednisone and 200mgs Plaquinal for the Lupus. I also take Gabapatin, Trazadone, and the migraine presentation at night. My legs still get the surges something awful??? Is there someone who has this? Add fibromyalgia to the mix with a IVIG deficiency in which I go for a monthly infusion. I appreciate any input.

Thanks

😊