I'm usually very positive. I get upset and have a rant and moan sure, we are all human after all, but i'm largely a positive person.
I forced myself out of bed to go for my usual morning swim. About half way through, I had to stop to rest my wrists as my joints hurt so much moving my hands through the water. My ankles are equally as bad, so instead of just swimming, I had to keep stopping to massage various joints, wincing in pain, having to focus on breathing exercises to try and get the pain under control enough to carry on.
Fibromyalgia does not primarily present in joints.
I believe I have received a wrongful diagnosis because my patient notes read "Patient has widespread pain" and I think that it is on the basis of this single statement alone, that I have received the Fibro diagnosis. I can't think of any other reason why they would attribute my symptoms to Fibro rather than RA.
These notes however are actually wrong, as I saw the Dr and told him I had widespread pain in all of my JOINTS. I was told by the MCAT diagnostic specialist that my GP is notorious for making very brief notes, which is why I believe this error has occurred.
With Fibro on my medical record, I feel like i'm now fighting a battle for them to address the real joint pain issues which have now spread to all of my joints after starting in just my wrists and hips.
Whatever happens, i now face 3 more months of pain and uncertainty and some days, dark days like this, I can't see the light at the end of the tunnel. The pain was so intense as I was getting changed I had to keep sobbing into my towel and it took me ages to get ready as my fingers are so sore, stiff and refuse to work properly.
I hope you are having a better day than me and will have a largely restful and pain free weekend xxx