Diagnosed with anti-ccp positive RA last September. Consultant said swelling in fingers, elbows, wrists, ankles and knees hot to touch. Triple therapy started. A year later and unable to tolerate dmards my GP asked for a second opinion in Bristol so I could get some better treatment.
Saw a 20 something registrar this morning. He said I do not have RA. A positive anti-ccp means nothing, a family history means nothing. I was just told I had something last year and I've made up the symptoms. There is no evidence of swelling and he could see "through my jeans" that my knees were fine. The tender joints, stiffness and tiredness could all be explained by fibromyalgia. There was no swelling in my fingers but fibromyalgia is a psychological illness and it's known people with it have body dismorphia and see things that aren't there. I asked about not being able to get my rings on and he said. It wasn't inflammation I was just knocking on a bit (I'm 47). I needed to come off all drugs and be discharged from rheumatology as I don't have any problem. Apparently any kind of positive anti-ccp means nothing. I am manufacturing in my head my symptoms because I've been told I have RA. He could not explain why the other consultant had thought I had clear active disease.
This has played straight in to the hands of my original hospital who were angry about the second opinion and did not want to treat me with biologics as I didn't meet the funding.
I'm in terrible pain with tender joints and I know my knees and hands are swollen because I can't get things on.
Apparently my allergic reaction to dmards is also a classic sign of fibromyalgia and the fact the steroids worked is irrelevant as it's psychological.
My other half who was with me wouldn't speak to me for an hour but finally said I could stop malingering and get back to work. My mum put the phone down on me. I'm just completely bewildered