I received my notes last night in the post and read with interest what the Rheumatologist stated, in particular the bit where he says "I suspect Palindromic Rheumatism..." though he has ordered further tests to entirely rule out RA.
PR often presents with negative bloods and transient swelling. In light of negative blood results, diagnosis i've read, is typically made based on reported symptoms & disability along with pictures taken by a patient during flares to show swelling and redness of joints. My GP has physically seen me during a flare, but the Rheumatologist has not, but did look at all the pictures i've taken.
Whilst i'm not totally relieved yet, I do feel like I might be a step closer.
I've read up on PR, but because it is rare there is very little information on it, however, what I have read, including an amazing piece of research by Arthritis Research UK, fits perfectly.
When does an "I suspect..." turn into a firm diagnosis? Perhaps this is as close to a diagnosis i'll get if all my tests for RA are negative? All questions for my GP on Monday I think!
Massive amounts of love going out to all of you lovely people who have been so supportive and helpful up to now xxx