Well this week I have continued with the hospitals apparent big push on what they are doing to me, sorry I mean working in partnership with my care hhhmmm!!!
I saw a specialist hand occupational orthopaedic therapist who hand made new splints that are soft, don't have the metal bar thing, pad out my hands and help my wrists but don't rub on my lumps. Also got a pair of oedema arthritis gloves which are very good.
Then got a steroid jab, phew done relief , I love my steroid holiday, even tho I look like a chipmunk and my blood sugars rise up like a sugar wave!! Saw diabetic nurse, keep increasing the insulin!! Getting away with injecting and checking sugars ok tho, injection much less painful than the RD ones.
Saw my NRAS volunteer for a coffee. We started off bring friends as she is my phone volunteer and happily we clicked and met up as we live very close , obviously we both brought other people for safety reasons, but we have do much in common and now she gets a lot back from me, so in grateful to NRAS for their support scheme.
Next son is looking at houses so we went to look at one I think they have fallen in love with and fell in love with it too!
Then Glastonbury is only 8 days now, so slowly getting the little bits together whilst hubby gets the big heavyweight stuff!! Well excited now and can't wait to see my friends on the disability site and from Attitude is Everything. I couldn't do Glasto without all their help.
Daughters exams finished now too, so slightly less stress in the house lol.
So ..... Pacing ! Mmm! I actually at last think I'm doing a bit better with it. I'm doing a little then stopping , and the steroid and the new Orencia infusion is I think helping a bit! Obviously early days and still got the usual pain and stiffness but I'm feeling positive and keeping a positive frame of mind!
So resting in bed just now with a lovely cup of tea from hubby bless him. So all good in my RD world today ha ha . Hope all of you who are sore today take hope that you have a good day too!!