Just a little update on a diagnosis.: Thank you to all... - NRAS

NRAS

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Just a little update on a diagnosis.

shezaroo123 profile image
13 Replies

Thank you to all the people that posted to my last post, I am posting again as have had a bit of an update. I got referred to a pain clinic which I thought would be a complete waste of time as was sent to one a couple of years ago and they were no help. Anyway went to this appointment and he didn't fob me off or try to make me feel like I was mad and imagining all these horrible debilitating symptoms and excruciating pain. He wants me back on steroids indefinitely and he believes my immune system is pretty much attacking most of body and organs which is causing me to be so ill and wants me to see an Immunologist. He said he couldn't give me a steroid shot there and then as it was too wide spread and have to wait a week for doc to get his letter so she can prescribe the steroids and refer me. So not a diagnosis but hopefully an avenue which may have a light at the end of the tunnel. Don't want to jinx it or get my hopes up just for them to be dashed but feeling a little hope right now and wanted to share.

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shezaroo123
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13 Replies
Someonesmother profile image
Someonesmother

Great news shezaroo I am glad you are being listened to and taken seriously. Good luck with the next stage..

shezaroo123 profile image
shezaroo123 in reply to Someonesmother

Thank you Someonesmother much appreciated.

allanah profile image
allanah

Excellent news, funny how the good docs will always spot things and take that extra but care xx

shezaroo123 profile image
shezaroo123 in reply to allanah

Thanks allanah just hoping and praying that it is finally going to get all sorted at long last. X

Patsy-57 profile image
Patsy-57

It does make a difference when someone listens and tries to make a difference. We all have enough to cope with without feeling like everything is a battle. I am really pleased for you.

shezaroo123 profile image
shezaroo123 in reply to Patsy-57

Thank you Patsy-57 very much appreciated.

hatshepsut profile image
hatshepsut

Glad you have a glimmer of hope now, what a difference when you find someone who is compassionate and thorough! M x

shezaroo123 profile image
shezaroo123 in reply to hatshepsut

Hi M yes it does make a difference and just hope the immunologist that I see will get me sorted. X

It's a good feeling when your doc hears you. Sounds like he cares. I am happy for you!

How long have had RA?

shezaroo123 profile image
shezaroo123 in reply to

Hi Abby11, I don't know what I have GP suspected sero neg RA but can't get a rheumy to diagnose that.

Deejojo profile image
Deejojo

Aww that's good hope u get some relief soon xx

shezaroo123 profile image
shezaroo123 in reply to Deejojo

Thank you Deejojo, much appreciated. X

shezaroo123 profile image
shezaroo123

Thank you to you all that commented, sorry for taking almost 2 weeks to thank you all but just been really bad. Anyway it is very much appreciated for all your kind words and you taking the time to read and comment. X

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