I finally got an appointment with the consultant. Those of you waiting they are out there....I was offered at least 3 times for today after chasing yesterday. After the re-referral through rapid I got the appointment within a week which was amazing. They can't do any xrays of course, but they have re-tested bloods to confirm whether it's sero-negative or positive. She didn't like the drug combination I was on at all, and wants to get me off it asap as patients who get covid on it do very badly. So once I can taper off I'll be moving to Methotrexate. I've been given a diagnosis of Inflammatory arthritis, and she sent me away with a big fat leaflet on RA. Felt a bit weird if I'm honest as they didn't really do any tests, just felt my joints, asked questions, looked at the photos I'd taken before the steroids kicked in. Thanks to all of you that have answered my questions these last weeks, you've been a lifeline in what has been a pretty challenging few months. 🙏🏻
Update as promised!: I finally got an appointment with... - NRAS
Great! A good rheumy can spot RA by shaking your hand (not that they do that these days of course!). And they don’t hand our prescriptions for MTX unless they are sure, so don’t fret about not having an x-ray before diagnosis. But do keep it on your list of questions for next appt as you should have a baseline chest x-ray sometime soon.
Mtx takes a while to work, so a bit more patience needed. But it works great for the majority of people.
Just being diagnosed is such a relief. It’s not a disease anyone wants but now you know why. MTX takes time to work but continue to keep a diary so you can pin point any reactions no matter how small. Any questions someone on here will help.
I’ve had RD for 4 years and I still have massive support from people on here.