last week I had my last dose of steroids. my symptoms of confusion, out of focus eyes, headaches etc have now gone so I guess I can say that unfortunately they were side effects. Having RA is horrible but it is another blow when you find that the drugs that are suppressing it are causing effects that are making it impossible to function too. I started on the steroids in November and like magic they suppressed the RA but then a month ago the side effects kicked in. Unfortunately I also had a bad reaction to methotrexate too in November so I am now waiting to see the rheumy to talk about the next step. So here I am with the RA starting to rear its ugly head again. Do you know what's hard is to have 3 months of feeling so much better and actually living not existing and then have it taken away again. I have had this rollercoaster of problems for over a year now, so despondency is starting to set in. I have just been reading some of the case history's on the NRAS website. One post was by a young woman who has RA that started at 21 years. Three years later she is about to begin a biological treatment after many ups and downs as she says. She writes about the struggle to be put on a biologic. The fact that there isn't the funding for these drugs, which for some people have lesser side effects, and work much better for their RA. She said that now she wants to highlight the difficulty in getting these drugs. She said how can it be right that people are not allowed to try a drug because your 'RA' is not bad enough yet'. Can you imagine being told that when you are so young. The knock on effect of taking drugs that are not effective enough and also give you bad side effects, is huge. Mentally emotionally and physically it takes its toll. What does that do but leave you with a person who is broken and probably ultimately will need more care that will cost the health service more. When I spoke to my GP the other day he told me that if I was in America the first drugs you are given are the newer ones. Obviously people have to pay for these and I don't know how insurance works with chronic disease in America. I guess for those who can't get health insurance there's no hope. Awful. I realise that nobody can say that you won't have bad reactions to the newer drugs and you may still have to try different drugs before you get results. BUT shouldn't each individual have the right to try these drugs as a first line of attack for this horrible disease. I am thinking of everyone out there fighting this horrible disease and hope and pray that one day people will not have to battle to get effective treatments. take care, thank you for listening to my rant!!
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