Sorry but I need to off load a bit. I am a patient at Rochdale Rheumatology Dept have a fantastic consultant and until recent changes fantastic support from the rheumy nurses. Since Xmas I have had no medication due to a severe reaction to Cimzia. During the past 3 months I have been tested for fibrosis and now I'm told phew I don't have that but now apparently I have nodules on my lung and they are referring me to a chest specialist. I have learned all this by post, during this there was no rheumy nurse help line for over 3 weeks, the message constantly stated due to illness there was no one to answer the phone. Finally after trying to get some explanation about the letters the message changed too. " leave a message for the rheumy nurse, however we will not give any results and it could take up to 7 days for your call to be returned ". I eventually got a message on my phone while I was with my GP who was trying to get some information for me. The message was from a nurse who I had never heard of who said " sorry we can't give any results out and if your medication is not working give us a call back. Alternatively phone your specialists secretary " had she checked before phoning she would have seen I'm waiting for medication. I desperately need some. I was furious I phoned the specialists secretary who told me I had to speak to rheumy nurse. She advised that the nurse was in the office just keep phoning until she picks up, I phoned the nurse 3 times answer phone she did not pick up. I was later contacted by a nurse I knew who advised me that the helpline had now been centralised, so I it seems I could never guarantee on getting a nurse who knew my medical history. She advised she would contact my specialist last Friday. Since then I have heard nothing. We have gone from a system were we received help, assurance and advice to one of knowing absolutely nothing. The stress of not knowing is making me ill. When you read terms like Fibrosis and Lung Nodules it's terrifying. My GP says my specialist should be explaining things. I just don't know where to turn. I registered a complaint, it states you will receive a call within 3 days. No call. Sorry for ranting.