As you know I have been having trouble getting the support I need and A compliment slip with a prescription with no input from me. Steroids were prescribed without a chat with me as I had started a medication that I had a reaction too and cannot take steroids with. 4 messages left on advice line with a confirmation call each time that message would be passed to my nurse. Still no phone call this evening.
Then my phone rang just a few minutes ago and it was my original nurse who had been redeployed and was just back. She was at home going through he patients records and had seen I had made a lot of calls to the advice line over the past few weeks and wanted to know if I was ok. so explained everything. She said the nurse had let me down and this will be addressed as she is her supervisor. So I’m not allowed to start the steroids until Monday I need to makes sure medication is out of my system. I’m only to contact her in future and bypass the advice line and have been given her works mobile number and can text at anytime. Told her how much I missed her and how good she is at her job.A bottle and flowers heading her way 😁
Yay! This has made me so happy. 😀Your original rheumy nurse sounds amazing, so pleased you have her back and a way to contact her directly! Make such a difference.
Sorry to hear that your flare up hasn’t settled though and you are needing the steroids. x
That's really good news. Glad you have now got yourself sorted with someone who knows what she is talking about. I think today was your lucky day, let's hope you have many more.
My word ...... what a difference 1 person can make! I don't know about you, but I feel so much 'safer' when I know I've got someone like that to contact if there's a problem?
I hope you feel better now you have a proper plan - I definitely would!😊
(But perhaps not a bottle? As a public servant I wasn’t allowed to accept gifts especially of alcohol, and only things around £25 “where refusal would offend”. Stick to chocolates, flowers or smelly things).
Must be the day for it. My consultant has just rang me too and I’ve finally got some meds to help with the flare I’ve been having for months. I’m with you it definitely makes a difference to be able to speak to someone and be listened to. So pleased that you’ve finally got some answers and good advice. I guess I should be welcoming the prednisone party too after today let’s hope it works for both of us !
How nice! Pleased to hear about your positive experience and I am happy for you. It gives you a feeling to be safe, reassuring that you can contact her directly. Lucky you 😊xx
You know how happy I was when you inbox me got your old nurse back! So so important to have that key person who gets you and gets RA and drugs x
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Thanks Dee. Even though all my joints are on fire 🔥 and boy could you cook an egg on me this morning. I’m feeling so much more positive 😁it doesn’t take much to make a difference. Didn’t want special treatment just help but got lucky.
I got borders biscuits
Bouquet for my GP team after Monday’s antics and they loved them as a sharing gift 🎁
Oh that’s great news ! It makes all the difference when you feel someone is keeping an eye on you when you’re taking these meds ! Lovely to show your appreciation too 💕
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What a week 
Nurse did not call
