I met a lovely lady last night while going to see the illuminations, there I was feeling sorry for myself waiting for a tram and we got chatting as you do lol and she said we (as her hubby and her) normally get the tram one way and walk back, oh that sounds scary lol and she said "why" I said I have RA and I'm feeling rotten at the moment "oh" she said "so have I " well you could have knocked me down with a feather, she told me she had, had a toe off on each foot and told me about her shoes and in souls, that she said was absolutely brilliant and then showed me her twisted fingers on both hands and she had RA for nearly 30 years.
There's me feeling like I did and this lady full of life, absolutely gob smacked I was lol, she on the methatroxate ( please forgive my ignorance I can spell it) and really recommended it so I'm off to the GP to ask about some, is it recommended? Plus on Monday I have to go to Liverpool for my incapacity benefit for my appeal, absolutely terrified even though I have been before and feel really feel down about it all.
Oh Phillip,
What an up and down experience that seems and what a lovely lady to come across when you were feeling so down.
Many of us on this site are on methotrexate (mtx) with mixed results.
Personally speaking I have found it to be very good. There were a couple of hurdles to get over first - the tablets didn't agree with me but when I switched to injection form it got rid of the worst of the side effects.
The list of possible side effects can be a bit frightening but again, from my own experience, I'd rather have those than a 'flare-up'. Others may not feel the same but you don't know til you try.
I'm pretty sure that your GP would not be the person to prescribe mtx but you can ask her/him to refer you back to you rheumatologist team or contact them direct. The wonderful thing about this site is that it keeps us informed about what is available so that we can ask and I think it is important to do what you are doing and move it forward ourselves if we feel we are getting stuck in the system.
Good luck with it and the appeal - (remember your worst day is what counts and if you can't repeat it you can't do it!) By the way, how were the lights?
Judy
Hiya creaky, she was an inspiration to all, I'll chat to the GP and see what they can do.