The phone never rang, re anti TNF!

[Vonnie55]

After crossing my fingers and toes waiting for the phone to ring re Anti TNF, guess what?............ The flippin therapeutics meeting was cancelled yesterday.

Oh, the let down i feel again! I have just rang secretary who told me, apparently, its supposed to be happening next Tues.....don't think I'll hold my breath!

[Luthien66]

OMG...that's outrageous.....and they have no consideration of what it is doing to you! I'm so sorry Vonnie....I was really hoping you would get good news yesterday.

Take care and let us know how it goes next Tues. Some more hugs to you xxx

[Vonnie55 in reply to Luthien66]

Thanks so much for your support, also scouser.

Take care all x

[summer32]

That is terrible, hoping it gets sorted tues.. not good!!. could you ring to check on monday it is going ahead tuesday??. which part of the country are you in?

[Vonnie55 in reply to summer32]

Hi summer, I will no doubt phone the secretary again on Monday to check.

I'm in North Tyneside area, the North East.

[summer32 in reply to Vonnie55]

miles from me them!! thank you for that email info x

[Hidden]

Oh now - how horrible for you. These people don't have a clue how much rides on these decisions do they? Hope it works out for you this Tuesday. X

[Vonnie55 in reply to Hidden]

Thanks Tilda, your dead right, they have no idea how we feel physically and mentally and how dependent we are on their decisions. Hope you are ok x

[Hidden in reply to Vonnie55]

I'm in a state of panic Vonnie because I have rheumy apt today preceded by DAS and everything seems to have gone meltdown overnight with pins and needles everywhere and raging hands and feet. Not just pain but pricking. I have the last appointment today and then other stuff on straight afterwards so a lot riding on today for me too. Wish me luck! Xx

[Vonnie55 in reply to Hidden]

So sorry Tilda, i have only just picked up my emails now.

Not nice that your symptoms have gone into overdrive and you have had a lot happening today.

By now your appointment will be well gone, i hope everything went as well as could be expected and are feeling somewhat better..xx

[miss]

Sorry to here your news. Have to say it don't surprise me at all just wish these authorities would consider us the patience way more. When we are waiting for news xx

[Vonnie55 in reply to miss]

Hia miss, i couldn't agree with you more. Nobody can understand like a fellow sufferer. xx

[Someonesmother]

Vonnie I am so sorry it is such a terrible thing to be waiting and then they just let you down. I am experiencing the waiting game too and can understand your frustration and anger at the absolute disregard the health systems show patients. I hope you hear soon and don't have to wait much longer.

[Vonnie55]

Hi someonesmother, thank you for understanding, it's no joke this waiting game as you say.

I hope you won't be waiting too long either, this just adds to the stress we are already are experiencing, causing more pain.

Hope you are ok xx

[Hidden]

Thanks Vonnie - no worries. My appointment was the last of the day and I had to stay out and attend a long choir practice for a concert day on Sunday. I will post soon when I've recovered my energies and thoughts - good luck for Tuesday and the phone call. Thinking of you. Xx