I had some gutting news yesterday.
My Rheumatologist wants to commence anti tnf for my ankolysing spondylitis however because the degree of change shown on my xrays isn't within nice guidelines they won't allow it. As this is apparently common in female patients she applied for my mri results to be used as they clearly show how much the sacroiliac joints have deteriorated and that it's the right time to commence the treatment to get maximum benefit but they've said no!
How much worse does it have to get. The pain is relentless, the fatigue makes my quality of life rubbish. I am sick of fighting day in day out just to keep going. I'm off work because the pain and fatigue have got that bad. What can I do?
Sorry for moaning, just feel very fed up at the moment