Anti TNF: Hello. I’m about to go on anti TNF Humira and... - NRAS

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Anti TNF

Celiar_carr profile image
16 Replies

Hello. I’m about to go on anti TNF Humira and very worried about side effects. Is anyone a current user and able to give any advise please? x

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Celiar_carr profile image
Celiar_carr
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16 Replies
SoulmanPaul profile image
SoulmanPaul

Hi

I've recently started Humira. I've had two self injections so far...next one due tomorrow. No side effects so far. My nurse advised that the most common side effect is irritation/rash at the injection site.

My advice to anyone is not to get hung up worrying about side effects...dont assume you'll get any. Cross the bridge if you come to it!

Paul

Celiar_carr profile image
Celiar_carr in reply toSoulmanPaul

Thank you Paul! 😀

SoulmanPaul profile image
SoulmanPaul in reply toCeliar_carr

You're very welcome ☺ keep me posted!

hawker955 profile image
hawker955

You should be warned about the side-effects by the nurse or rheumatologist. In short: The injection stings a little bit if used straight out of the fridge but only a very little bit.

Thje e effects that you need to know about are your susceptibility to certain infections. Flu and colds, plus infections from bacteria in unpasteurised cheese, Stilton etc, so you should not eat those. Likewise in pasteurised egg-products. Those must be avoided. Beware unwashed salads or other vegetables because of Listeria . Otherwise on a day-to-day basis I don't think you are likely to notice side-effects. I heard somewhere, from the USA I think that biologicals might create a tendency to put on weight but that can be dealt with by diet and exercise and is a small price to pay for a pain-free life. My rheumatologist had not heard of this when I asked him though.

Jesnaskah profile image
Jesnaskah

Haven't tried it. I hope it works for you. Good luck

Celiar_carr profile image
Celiar_carr

Thank you!

Fifi1972 profile image
Fifi1972

It’s a matter of trying them. If you get any side effects then stop and they will change to another one. I’m now on my 3rd (stelara) and I’m amazing with no side effects but have previously tried enbrel and cimzia bith caused mild heart failure. It’s very rare but corrects itself as soon as you stop the drug. Good luck

Celiar_carr profile image
Celiar_carr

I will do, thank you! x

AY-54 profile image
AY-54

Humira has been very effective for me for the last 10 years but is now wearing off well before the end of the fortnightly injections, so I'm about to switch to a new drug. I haven't noticed any side effects specifically related to Humira. As I've also been taking weekly methotrexate and daily Prednisolone, I think any side effects are more attributable to these 2 drugs than the Humira e.g. weight gain (round face) and thinner, more sensitive skin. I certainly haven't experienced any serious problems. I hope it's successful for you.

Celiar_carr profile image
Celiar_carr

Thank you! I hope the new drug works well for you.

Riedenise profile image
Riedenise

I was on Humira for 11 months unfortunately it didn't work for me.

It can sting a little, so take it out of the fridge at least half hour before you use it. My Rheumy nurse suggested taking an antihistamine before, to help with any stinging. The tummy area is best, less bruising for me.

The only side effect I got was a site reaction. Ice can help with that afterwards. I hope this helps you. Rie

Celiar_carr profile image
Celiar_carr

Thank you! Sorry it didn’t work for you and I hope you have found a med that does.

Deejojo profile image
Deejojo

I’ve just had my second injection last week no side effects just a little tired 😴 after it but that’s it really hope u go on ok??? With it xx

Celiar_carr profile image
Celiar_carr

Sounds promising! Glad it is working for you. Thank you. x

Nyreedw profile image
Nyreedw

I've been on mtx and humira for the last 4 years, had RA 20 years, been amazing. No side effects whatsoever, no problems at all. Saw a fast improvement too. Listen to the info your nurse etc gives, be careful in sun and with the foods advice, then get on with living. Good luck x

Celiar_carr profile image
Celiar_carr

Thank you for the advice and positive comments! 😀

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