Went to Rheumy appointment yesterday and explained that the dreaded cough has been back for 3 weeks and I am in a bad flare.
She went through all my notes from the last appointment and letter from the chest doctor and said that she cannot understand why the MTX is causing problems now after 5 years as most problems start at the begining of taking the meds.
I was off the MTX for 4 months at the begining of the year and was given Inhalers to use in April and the cough and breathlessness went away and I felt really good.
I am back on the MTX for 10 weeks and the cough is back as bad as before but not the breathlessness but I think that is because I am taking the inhalers.
She said yes it could be the MTX because it is known to cause chest problems in some people.
She said that I have to stop the MTX and to increase the Sulpha from 4 daily to 6 daily, I also take 2 Hydroxy daily but she said that she does not think this alone will be enough so I have to think about starting Leflunomide.
We spoke a again about the TNFs but as my sister has MS it is still too much of a risk for me to think about, maybe if nothing else works maybe I will need to think about these.
So I got a steroid injection in the bum and went away with a lot to think about.
She gave me her direct telephone number if I struggle and she will get the Leflunomide setup for me if I phone her.
I do not see the chest doctor for another month so I will see what he has to say about the cough returning, but I would like to try and get the cough completely away before starting any new meds.
I cough so much sometime I am nearly sick then other times it starts to hurt my ribs and back with the constant coughing. Fingers crossed it is the MTX that is causing it and stopping it will clear it up.
Well thats all my tales of woe.