Hey all. I hope your feeling well and pain isn't a problem to u, I just thought I'd have a catch up. I have been having quite a nasty flare presently. Work is a constant struggle (I'm a nurse) while working in our rheumatology clinic today my consultant caught sight of me, she randomly (small perks) reviewed my blood work, has brought my appointment forward by a month with a comment of "I can't believe your working!" "Biologicals are the way forward"
I'm hoping they will help lots.
Cheers. cara
Cara,i hope your rheumy dr gets you on some serious drugs soon. Its good that he has noticed you are struggling. Isn't it sad that anyone with ra ends up not being to work,i am not saying everybody ends up not working but a good majority of us do end up not working. I hope you soon get the drugs that you need to help you.xxx
Hi Cara, that's really good that your Consultant noticed you're struggling you're in a good place to be spotted! The comment about people with RA probably ending up not being able to work had really upsets though as I'm not ready to give up work yet and can't afford to especially with all the crack down on benefits. I will have to check this out. Good luck with your treatment xxx
Lots of people on this site work & the benefits issue is worrying I know. I'm sure Cara, or rather the consultant, was referring to her own situation re. work. After all, RA affects all of us differently at different times. Good luck with continuing to work and, incidentally, have you emphasised how important work is to you to your Rheumy? Sometimes it does seem that they try just a little harder to get the treatment spot on when they know about individual circumstances. xx
The comment about not being able to work with RA was not made by Cara, I understood Cara's comment to mean how was she working at that time with the way her RA was when her Consultant looked at her bloods....Cara, huge apologies for "talking around you"! The comment was made by another person.... I thought the point of us taking these vile medications was that we can lead a fairly normal life as in continuing to work etc obviously it won't all be plain sailing all the time though. Like I said I'm not in a position to give up work or would I want to because if I had to I think RA would become all too consuming! Luce you have made it clearer though and I will ask my Consultant or the helpline. Good luck Cara!
Doh! Sorry Angej & Cara for spreading confusion! xx
Hi Sylvi
As you said, it is sad when anyone has to give up work, but thankfully this is not a 'majority' as you have stated and there is hope that the situation with regards to work is improving, as people who are newly diagnosed today have a good chance of getting their condition under control with all the advancements in medication.
If anyone is concerned about work, have a look at ou work booklets. One of these is for the person with RA and the other is to give to their employer:
nras.org.uk/help_for_you/pu...
nras.org.uk/help_for_you/pu...
Kind regards
Victoria
(NRAS Helpline)