eczema

[Palmtreeguy]

2 years post-transplant. Now I have eczema.Topical solutions ( creme/lotion) has not worked. Before I head to the dermatologist , what have people safely used - Dupixent and its varieties? More potent corticosteroids ( 1% has done little to nothing)?

[Bassetmommer]

Just make sure it is eczema and not psoriasis. Two different things and they look similar. Two different treatments

[Palmtreeguy in reply to Bassetmommer]

Sadly, I know psoriasis quite well. Have had it a lifetime - but the tacrolimus seems to have ended it. Who knew?

[Bassetmommer in reply to Palmtreeguy]

Oh my that is fabulous. The Doc at the transplant center said the drugs would take care of the PsA and I did not believe them Did they tell you there would be issues with getting a transplant because of it? My rheumatologist just told me that this week, after 20 years of being with him. He never has said a word before this about the complications of PsA and renal...... although I knew it.

[Palmtreeguy in reply to Bassetmommer]

I was on Stellara prior to the transplant ( after Enbril, PUVA treatments, anthrallen, etc) - which is 4 injections/year. My Team checked into it thoroughly - all they required was that I get my last shot 30 days before the transplant. so I did. I had no idea what the psoriasis situation would be post-transplant. It cleared up totally. After having psoriasis for over 50 years - sometime covering 30% of my body. The biologics that I had been taking are basicallyimmune-suppressants. The tacrolimus supplanted the Stellara and performed the same function. In the 2.5 years since transplant, not a bit of psorisais anywhere.

[Bassetmommer in reply to Palmtreeguy]

I am coming off Remicade which has done a poor job. I am going on Stelara, which I was on before Medicare, and told I had to come off of it. I was on Orencia, and that started to fail. I have been on over 12 biologics in my past. Some where death in a bottle, like Otezla. Enbrel worked for over 8 years and then I went through a series of tries and fails. My psoriasis is not that bad even with the Remicade. But before I had it head to toe. I go in front of the transplant board on this upcoming Tuesday. I am a nervous wreck.

[Palmtreeguy in reply to Bassetmommer]

Yeah _ was on Embril for about the same length of time before it stopped working. Humira before that - same story. Stelara worked fine until my transplant - have not needed it since. Good fortune on Tuesday - let us now how it goes. ( The tar treatment was the worst. )

[WYOAnne NKF Ambassador]

Are you sure that it is eczema? Maybe it's an interaction with your meds.

[bluekidney]

I never had any skin issues before my transplant, but after the first month I started to get rashes and bad skin eruptions. The transplant nephrologists kept saying it was athletes foot or fungal infections and prescribed the 1% corticosteroids but nothing helped. So I ended up being referred to the dermatologist who diagnosed all the troubles to be eczema. I didn’t even know what it looked like before then. They prescribed clobetasol but I am only allowed to apply it every other day when I have bad outbreaks. After the cream it seemed to clear up. I had my first outbreak this week after one year without seeing the eczema.

[Palmtreeguy in reply to bluekidney]

Thanks for the suggestion.