2 years post-transplant. Now I have eczema.Topical solutions ( creme/lotion) has not worked. Before I head to the dermatologist , what have people safely used - Dupixent and its varieties? More potent corticosteroids ( 1% has done little to nothing)?
eczema: 2 years post-transplant. Now I... - Kidney Transplant
eczema
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Just make sure it is eczema and not psoriasis. Two different things and they look similar. Two different treatments
Sadly, I know psoriasis quite well. Have had it a lifetime - but the tacrolimus seems to have ended it. Who knew?
Oh my that is fabulous. The Doc at the transplant center said the drugs would take care of the PsA and I did not believe them Did they tell you there would be issues with getting a transplant because of it? My rheumatologist just told me that this week, after 20 years of being with him. He never has said a word before this about the complications of PsA and renal...... although I knew it.
I was on Stellara prior to the transplant ( after Enbril, PUVA treatments, anthrallen, etc) - which is 4 injections/year. My Team checked into it thoroughly - all they required was that I get my last shot 30 days before the transplant. so I did. I had no idea what the psoriasis situation would be post-transplant. It cleared up totally. After having psoriasis for over 50 years - sometime covering 30% of my body. The biologics that I had been taking are basicallyimmune-suppressants. The tacrolimus supplanted the Stellara and performed the same function. In the 2.5 years since transplant, not a bit of psorisais anywhere.
I am coming off Remicade which has done a poor job. I am going on Stelara, which I was on before Medicare, and told I had to come off of it. I was on Orencia, and that started to fail. I have been on over 12 biologics in my past. Some where death in a bottle, like Otezla. Enbrel worked for over 8 years and then I went through a series of tries and fails. My psoriasis is not that bad even with the Remicade. But before I had it head to toe. I go in front of the transplant board on this upcoming Tuesday. I am a nervous wreck.
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Are you sure that it is eczema? Maybe it's an interaction with your meds.
I never had any skin issues before my transplant, but after the first month I started to get rashes and bad skin eruptions. The transplant nephrologists kept saying it was athletes foot or fungal infections and prescribed the 1% corticosteroids but nothing helped. So I ended up being referred to the dermatologist who diagnosed all the troubles to be eczema. I didn’t even know what it looked like before then. They prescribed clobetasol but I am only allowed to apply it every other day when I have bad outbreaks. After the cream it seemed to clear up. I had my first outbreak this week after one year without seeing the eczema.