My journey with kidney disease started when I was born when I had a bilateral reflux that damaged a little bit of both my kidneys. I had a surgery to fix that and everything went on well until I was 17 when I got diagnosed with CKD because of protien leak and after close monitoring confirmed that I had FSGS. I am 27 now, have moved to stage 4 with GFR ranging from 24-27. My doc has said he will transfer me to the transplant center if I hit 20. I know that soon enough I will be getting ready for a transplant. This has shook me to my core now. My girlfriend broke up with me when I confined my diagnosis with her as she also got scared which is understandable. Ever since, I have been scared and whether I will be to have a family and lead a normal life like others with the exception that I take medication. Has anyone had this feeling of scared to death about life? I have been constantly worrying lately and it would really helpful if you guys could suggest what you all have done in situations like this.
Sorry for the rant. Hoping to hear your inputs and just wanted to introduce myself to this great community.