Covid-19: Hi everyone.! I lost my... - Kidney Transplant

Kidney Transplant

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Covid-19

Slcallat profile image
Slcallat
•4 Replies

Hi everyone.! I lost my transplant this year of 23 years🙁. My family and I also came down with Covid 19....My Father-in-law was hospitalized and passed away last week, my husband (healthy) although not hospitalized, was very ill, and I Remained Asymptomatic! I’ve been on steroids for 35+ years (Lupus). My Nephrologist is baffled by this. Does anyone know anyone or has had the same experience?

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Slcallat
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Kbristow profile image
Kbristow

I am so very sorry for the loss of your father and that you all came down with COVID. Losing your transplant on top of all that - I can't even imagine what you must be feeling. Did you lose your kidney because of COVID even though you were asymptomatic? I hope 2021 will be a much better year for you.

Slcallat profile image
Slcallat• in reply toKbristow

Thank you so much. The transplant kidney failure happened before Covid - I was told the failure was due to damage caused by the anti-rejection meds long-term use over the 20 years. Didn’t know that could happen. I asked my nephrologist and primary, though asymptomatic, what could be the side effects of having tested positive for Covid. We have dialysis centers here that only take care of Covid patients. The answer was ...”They really don’t know.” I will ask about the Cytokine Storm.

LisaSnow profile image
LisaSnow• in reply toSlcallat

So sorry to hear about your father and other family members. Are you on dialysis now? Although you already have antibodies it is still possible to get a secondary or new infection. Please be extra careful during your treatments!

Lionkin profile image
Lionkin

I am sorry and sad to hear about the events you are going thru'. Can you ask your nephrologist or perhaps in combination with a infectious disease Dr - whether your body experienced a Cytokine Storm. This storm is quite deadly & can destroy any organ in the body. I wish you the best & Stay Strong.

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