Hi everyone. 2 weeks shy of 2 years post. Looking to confer with other recipients regarding medications, side effects, and coping with the new life.
Introduction: Hi everyone. 2 weeks shy of... - Kidney Transplant
Introduction
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Hi I am 20 mos post. Been doing great with no noticeable side effects. Making sure I stay on top of all appts, diagnostic screening/testings to detect anything early-on so it can be addressed. How about you?
Congrats. Where did you go? I am Cleveland Clinic strong!
Things are very well excluding recent side effects. I have some type of blood cancer that has begun, and ulcers in my esophagus, stomach and small intestine so I get new pills for the damage caused by the other pills.
And I am not sure what the cause is, but my hair and nail health are rough, mostly falling out, breaking, peeling nails, dry, cracked etc. But I take biotin (w Dr approval of course) and for a time it worked, but no longer.
I had a lot of hair loss as well My dr. Wrote me a prescription for zinc and it worked great. within a month no hair loss and after a few months hair grew back
Congrats on 2 years!
Side effects are different for each medication, so it depends on what your taking, Feb.2018 will be three years for me but this is my fourth transplant ( kidney) I think one of the biggest things is remembering that your more susceptible to viruses because of your immunosuppressive drugs.
4 transplants. I can not even fathom that. Tacrolimus and Myco are the 2 primary drugs. I am allergic to steroids so standard many treatments were off the table. I have been fortunate and only had 1 cold in the 2 years. It may seem strange but I am healthier now, on immunosuppression than ever in the past. Did you, or do you, take either of these?
I celebrate 2 years on Aug. 6. Had a bad bout with the flu this winter but other than that I've been healthy. Some tremors but medication adjustment had helped.
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In October I will be 18 years post transplant and my kidney is working like a "champ." I do have some stomach issues (mainly acid reflux) due to the immunosuppressants. I take myfortic & neoral. And now take other pills to help with the reflux. Some days still have problems with diarrhea due to myfortic. My finger nails & toe nails sometimes have issues with dry cracking & grow somewhat crooked. No big deal!
The thing I do a lot is wash my hands. I think that is one of the best things you can do to prevent getting sick. We have done a lot of traveling since my transplant, even to Europe. I find that I always get sick when we get back home. I swear it's the "germy" air plane.
Most of all enjoy life. Don't worry about side effects. Maybe they won't happen to you.
Take care!
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Surely understand your desire to share information about med's and side effects. I've had insominia and some hair loss, but the joy I feel for my 2nd chance for a better and longer life pales in comparison. How are you doing?
Congrats on 2 yrs. I just hit 4 in July