When to see a nephrologist?

[mannp]

I have had stage 3 CKD for 20+ years. I saw a nephrologist that ordered 14 vials of blood drawn. Due to a conflict in work and scheduling a return appointment I never went back. My GFR has remained relatively stable all these years. Should I be seeing a nephrologist? I have only had one doctor even mention my CKD. After I had an endoscopy the doctor told me to never take NSAIDS because of the kidney disease. So, now I don’t. No one had ever mentioned that before. When do I see a nephrologist?

I am also on the Parkinson’s Disease Forum. I have parkinsonism. I don’t have anemia, but my hemoglobin is always low so I am unable to donate blood. Could the low hemoglobin be caused by the CKD? I am also always fatigued.

[orangecity41 NKF Ambassador]

Maybe contact your Doctor about the results of your last blood draw. You might consider getting a second opinion from another Doctor on your CKD as to what level you are. Good your Endo Doctor mentioned to you about not taking NSAIDs. A Doctor should be able to advise you on your low RBC, It could be caused by CKD.

[Bet117 NKF Ambassador in reply to orangecity41]

Absolutely!

[Marvin8 in reply to orangecity41]

I asked for a second opinion and my doctor said I was ugly.

[orangecity41 NKF Ambassador in reply to Marvin8]

I would look into getting new doctor that communicates better.

[Marvin8 in reply to orangecity41]

That was an old vaudeville joke.

[orangecity41 NKF Ambassador in reply to Marvin8]

Thanks for the humor.

[Herkidney]

Never hurts to have the most up to date labs. That way, if something is off you can discuss with your physician. Best wishes!

[HealthBuddyMelissa]

I would recommend you see a Nephrologist. GP doctors will almost always prefer to manage all of your diseases, but a Nephrologist is needed if you have CKD. That is my opinion.

[Kbress]

Probably be a good idea to discuss your kidney disease with your PCP and get blood work to see were your kidney function is. After that have your PCP refer you to a nephrologist if indicated.

[Bet117 NKF Ambassador]

Hi mannp,

I tend to agree with both Orange City 41 and HealthBuddy Melissa.

According to what you mentioned, you have a number of health issues going on, but It appears that your overall health is fairly good at this point, so perhaps it is time to put together a health care team; quarterbacked by your PCP who will address each of your issues in their specialty and communicate with both you and the rest of the team to keep you as healthy as possible.

My husband's PhD research and dissertation was on Parkinson's Disease; some neurological and some clinical so I know the eventual challenges.

I don't know how closely your PCP has monitored your renal, liver and cardiac function, electrolytes and other necessary areas. If you are feeling fatigued or have any questions regarding your labs; particularly your hemoglobin, it is important that you have this discussion with your doctor.

If your CKD has not progressed in 20 years than you are blessed.

Establishing with a nephrologist at this point can only be in your best interest as he/ she will perform their own series of tests which will provide a baseline as to where you are at this point and go from there. They also may make dietary suggestions and or refer you to a dietician who will work out a food plan with you which is both nutritious and appetizing. This is one of the best ways to prevent renal disease progression.

Kidney patients basically eat a low protein, low sodium diet ( 1500-2000 mg) with no red meat or processed foods. Foods high in potassium and phosphorous are also watched and quantities can be directed by your lab results. Protein, albumin calcium, sodium, potassium to start. Avoiding dark colas, drinking plenty of water and getting some exercise is important.

NASIDS are not recommended for kidney patients, so avoid taking them.

These issues can be discussed with your nephrologist, neurologist and concur with your PCP.

Additionally, a thought; when going to an appointment, I would print out a copy of your labs and check off any areas that may flag and ask questions. If possible bring a family member with who has a notebook to scribe for you; this gives you stronger discussion focus and serve as documentation of the discussion during the appointment and review l

before your next appointment.

Being that you have been diagnosed with Parkinson's Disease, it is also important that your neurologist become an active part of your team as this will avoid conflicts of medications and possible interactions.

Most importantly that your team works together and you receive the best care possible.

I hope that this helps. You are not alone as the folks on both sites are here to listen and support at anytime.

Reach out and someone will always reach back.

Please let us know what your status is. We care.

Bet

[Rt333]

Stable for 20+ years Wow that’s amazing. Any tips how to maintain stability? Appreciate it thank you