Numbers fluctuate again

[Olivia007]

My husbands numbers were great 2 months again now they r the usual bad numbers

eGFR 35 L

Bun 30 H

Creatine 1.93 H

PTH calcium 12 H

Parathyroid Hormone 9L

Iron Binding Capacity 440 H

I don’t understand this disease anymore it’s exhausting up and down

Any thoughts

Thank you in advance

Olivia

[vinadhun2]

how much were creatinine levels over last two months. How much have they been fluctuating.

Have you made any changes to the diet

[Jayhawker]

Have you and your husband asked the nephrologist to go over all the data fir the past 3 renal panels with you in detail? As the nephrologist does this s/he can share interpretations of the data over time, etc.

My nephrologist constantly tells me that my data will fluctuate so he looks fir trends, patterns over time. He also watches specific data on me particularly closely, eg, my parathyroid data.

I also take a graphic organizer I’ve created to my appointments. On it I highlight any soymprims I’ve been experiencing. I code these l(R = resolved, I = improving, D= deteriorating). I ask him to identify the symptoms that are most likely due to my CKD and which are least likely due to my CKD. I then share all this with my PCP.

I also take a table with my daily weight and BP readings. I’m a type II diabetic but not on medication for that; it’s totally in check and has been since March of 2011. So I no longer monitor my glucose daily; however, I do bring in my 3-month A1C data for him as well.

Anyway, I’d just want more detailed information about my labs as well as how my nephrologist is seeing my renal function ...

Jayhawker

[Hidden]

in the last 8 months I've been tested 5 times, my creatinine eGFR has been upper 50, lower 50, 60, 40 and 75. In that order, about a month between each. Never had protein in my urine or any other symptom of CKD. I found out about cystatin-c testing and had that done on my own, my eGFR based on cycstatin-c is 115. I am really appalled that doctors even use creatinine to diagnose CKD. The kidney foundation says 15% of the population has ckd and 90% of them don't know it and never get it treated, but only about .3% of the population is in end stage renal failure. This indicates that CKD is massively overdiagnosed. Get a cystatin-c test if you have not, it is more accurate and less prone to fluctuation and error.

[Olivia007 in reply to Hidden]

Thank u