I was only diagnosed about 8 months ago. For now I’ve settled in the low GFR 40’s. I never know what to tell people that I’m dining out with about my health. We often eat shared meals when eating out so I don’t make a big deal about it but just make sure there are a couple of things that I can eat. Invariably a friend will ask how long I’ve been off red meat or similar. I tend to make light of it and say something like I’ve had dodgy kidney results. I don’t want to worry anyone. Of course my family and close friends know that I have CKD. Should I just call it that to everyone? I’m wondering what people here said when first diagnosed? Thanks
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Badger2024
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Its really none of anyone's business. So, tell who you want. I only told people that cared about me and knew me well. People have a funny reaction to CKD. They do not understand it. As far as diet, you do not need to explain anything. Just do it. I went off red meat long before I was diagnosed and I just told people who were nosey it was a personal choice.
I have to laugh at people and their desire to get "into personal business." My first office where I worked, my desk faced the hallway. We had no doors. It really sucked. When I ate lunch at my desk, people felt it was perfectly alright to come in an inspect what I was eating, which was mostly salad. And they made comments. My boss was famous for it. She would come in, inspect and they say, " I do not know why you don't lose weight with what you eat."
Now conversely, if you are going to be looking for a kidney donor down the line, tell everyone. You never know where it might come from. You are a long way off from that though.
Haha love your reply. I have actually told most of the people who matter to me and yes they still don’t really get it but for now that’s okay. When ordering my own meal it’s so easy. There is always something okay and delicious. It’s when we go to Asian restaurants which is so common here in Australia. All the dishes go in the middle. It’s not just a matter of saying no meat. The sodium content is nuts in Asian food so I feel I need to speak up. If possible I try and choose the restaurant. We eat out with friends about three times a week
I love Asian food and had to stop it, at least for a while. It is heavily salted and what I like has oil in it. But...when we did eat it, I switched to veggie lo mien and added steam veggies. Until I ordered the veggies to take home. When I got to the bottom, there was water left from the veggies.....BROWN water, and it had dirt in it. YUCK!
I find that people criticize those who have control over their food, aka dieting, that other people are jealous and want to sabotage you. Don't let them. Order what you need and want and tell them to mind their own menu.
I’m born and bred from Hong Kong as were my parents despite being British so Asian food is the norm for me. I cook it a lot and like you, have had to give up a few of my fave dishes. I often cook steamed fish with ginger and spring onions now. It’s one thing when you cook at home though. Ordering the same in a restaurant, it’s unnecessarily salty. Luckily I don’t ever hang around with people who criticise what I eat but they certainly ask questions about my now limited diet and vague admission of dodgy kidney blood results! I quit dieting about seven years ago. Best thing I ever did. I haven’t consulted a renal dietitian yet but it’s about time I did as I also suffer from bad silent reflux which limits my diet further and I really feel I’m not getting enough nutrition. Sorry I’m rambling now
Ramble on.... I can talk food for days. Just so you know your CKD is not at in a bad place. With your knowledge and cooking abilities, and eating clean, you can stay where you are for a very long time. I went to a renal diet in 2018. I was stage four. I stayed there for several years and then went to stage five. I was told in 2018 I would be on dialysis in six months. It was over 6 years later. And because I started when I still have residual function, I am ony doing two hours, 3 days a week. My labs came back and they are fantastic. Everything is in range. I attribute that to being back on a strict diet. It does work.
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