Crazy results

[Dragonfly1968]

I have NEVER seen my numbers where they are. In 6 weeks my creatinine went from 1.6 to 93 and GFR from 34 to 71. My GFR has never been that high. It’s always been in the 60’s for as long as I can remember. What’s crazy is that from October to December my creatinine went from 1.2 to 1.6 and gfr 54 to 34.i know levels can fluctuate but 34 to 71? Anyone else have this happen? I see my nephrologist for the first time next Thursday and will tell him about it.

[Marvin8]

A repeat lab workup will tell the tale.

[Dragonfly1968 in reply to Marvin8]

I see my nephrologist on Thursday. I’m hoping these last 6 months were just a bad dream. lol And what’s even crazier is that I do t feel any different. I know he will do way more bloodwork than what’s been done. Nothing has changed in my life in 6 weeks. Not even my diet. Even so, my gfr wouldn’t increase that fast that high. And my creatinine has always hovered 99-1.1 for as long as I can remember. It was just a shock to see my CMP normal when parts of it have either been declining that you don’t want and other increasing that don’t make sense. I have to scratch my head and wonder if they mixed up the results with another person.

[Marvin8 in reply to Dragonfly1968]

Personally, with those numbers, I'd be on the positive side as opposed to the negative side, but that's easy for me to say since I'm not the one left wondering.

[Dragonfly1968 in reply to Marvin8]

I’m not being negative. I’m completely confused because of how low and high my levels have changed from October until now. Just within 7 days my GFR went from 58 to 51 and creatinine raised. I’m and then in another 2 months (my oncologist wanted to check them because of the change) went from 51 to 34. That was December 10th and told me to get my but to a nephrologist as soon as possible. My appointment with my new nephrologist is on Thursday and wanted to go into that appointment with current knowledge to share with him. I’ve spent the morning going over my bloodwork back to 2013 and am so surprised at how high and low numbers were yet no one seemed to look at previous bloodwork as a comparison. Looking back through 2013 I truly believe changes were starting. I also have chronic bladder infections and interstitial cystitis which gee, I wonder if that has lead me to where I am today. So until you know someone’s history don’t tell them they are being negative. I don’t post negative comments to get attention. I truly am confused and asked if this has happened to anyone else. I don’t understand because I’m relatively new here and don’t appreciate someone implying I’m acting like “Woah is me and not happy with those numbers. I have been telling drs for the last year that I feel like my body is quitting on me. I recently was diagnosed with Barrett esophagus which is precancerous. I had my thyroid removed because of potentially cancerous nodules and my cholesterol went through the roof in a year and a half for no particular reason. I’m guessing my nephrologist will address that. So if someone posts a sincere comment or question don’t tell them they shouldn’t be negative but happy. I’ve read several comments to posts that more or less say “I wish I had your numbers and until you’re in stage 4 then you have nothing to complain about or worry about.” Well that’s BS and obviously I don’t belong on this forum if that’s how people are going to treat others who aren’t “really sick” because their numbers aren’t high enough or low enough. It’s like being in a club and you have to meet certain requirements to fully be a member. Others wise you’re left on the side lines waiting. I don’t need or want this kind of “support”. I’d rather be alone than have someone attempt to make me feel less than. I get plenty of that from people who aren’t in the virtual world. I promise though that I will never post another question or comment. I don’t need someone telling me I’m being negative. Or that I’m not sick enough because their numbers are worse than mine. I need people who will offer support and understand what I’m going through just as you and everyone else on this forum when they first started having problems rather than tell me I should be happy with results when they make absolutely NO sense. If you truly want to help people don’t tell them not to be negative but happy. I truly am sorry for whatever you’re dealing with but don’t negate someone else.

[Marvin8 in reply to Dragonfly1968]

I most humbly apologize for my insensitivity and wish you the best.

[Dragonfly1968 in reply to Marvin8]

Marvin8, I apologize for blasting you. Unfortunately you were one who I took my frustrations and anger out on. Much of what I said is related to reading posts from many others. However it should have been a separate post not directed at you personally. I'm seriously considering doing that--writing a post without so much anger. I know there are others who have to feel the way I do. Many times stress in someone's life--which I happen to have a lot of that's not medically related--can cause us to react in a way that is not acceptable. I am in no way using this as an excuse. I wrote that post out of an accumulation of stress and frustration. This sounds cliche-which I really don't like phrases like this-but I am not the person who wrote that. That's not my personality. For the majority I am a positive person who only wants the best for everyone and hopes my positivity can help see other's situation in a different way. About 90% of the time I am a Polly Anna without rose colored glasses viewing the world and life. I have learned that I cannot change others but I can potentially change others by the way I am seen reacting to situations. I have personally seen it evolve over time with my husband. And the funny thing right now is that I'm working on showing that not everything or everyone has a bad side. Instead of thinking ____why don't you think___. He automatically reacts to situations negatively without giving any thought of other ways to react before he reacts. I believe it's become a habitual that can be changed over time if given and shown other ways to react. Unfortunately I reacted without giving any thought to your post. I truly am sorry. I hope you have a good day today.

[KidneyCoach NKF Ambassador in reply to Dragonfly1968]

Creatinine between 99 to 1.1 are normal levels so if your her was 34 it likely was an error. I suspect lab errors. I would request a full set of labs at least 1 to 3 months apart to get a better view and at a different lab if possible. JMHO. Blessings

[Dragonfly1968 in reply to KidneyCoach]

Those tests were 6 weeks apart. I’m guessing my nephrologist will do his own work up. Thanks.

[AnneEG in reply to Dragonfly1968]

I'm so glad Marvin8 apologised and hope those results are real. Good luck.

[Tolmezzo]

A good way to confirm improvement would be to check other renal parameters like BUN, potassium, phosphorus, sodium, anemia, etc If all improved you can be more confident. All the best!!

[Olivia007]

That’s sounds like good news for the Gfr don’t u want it to go up?

[Olivia007]

My husband gfr a week ago was 36 got tested a week later and it went up to 56 I’m confused as to what to think or believe and he didn’t eat or do anything different can those tests be wrong how do we know definitely he had other blood work and they cane back food to comparing to a week ago where we thought he was going on dialysis soon?

[Olivia007]

Who knows anymore

[db79]

Hi D1968. Due to an unrelated health issue, cancer diagnosis, I've had my GFR tested several times in the past 6 months and my numbers look like this:

71 in june and then several tests one week apart Oct-November: 77,66, 67, 73. One month later 75 and then another month 62. I havent done anything that would explain why it dropped so much from one week to next, from 77 to 66 or even more in one month from 75 to 62.

[Dragonfly1968]

Let me clarify; my creatinine went from. 1.6 to .93. My error. Sorry for the confusion. My nephrologist said I probably had some sort of "trauma" to my kidneys that magically healed within 6 weeks to create such a drastic just. HOWEVER, he want to see me in March, get an ultra sound, do more bloodwork to see where everything stands. He wants to make sure this was a one time only event. He also wants to check for microalbumin to see if there is a possibility of developing CKD. My NEW PCP ordered another whole host of tests that no one has even thought about that could cause the major change. There are a few I hope return negative. I will get those results Wednesday morning.