kidney: hi kingfisher3 here I am 69 this... - Kidney Disease

Kidney Disease

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kingfisher3 profile image
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hi kingfisher3 here I am 69 this month stage 3 ckd as said before but I am not getting any where with doctor I am feeling sick most days tiered all the time cant sleep very well because my legs get restless or cramp doctor said these are not kidney problems I am feed up of feeling like this had ckd3 for about 6 years might be more can any one help

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kingfisher3
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Bunkin profile image
Bunkin

Have you gone to your regular doctor about the leg cramping? Maybe he could give you more answers. If not I’d consider changing nephrologist. Someone is bound to be able to help you with that. Prayers😀

kingfisher3 profile image
kingfisher3 in reply toBunkin

Thank you yes I told him I get out of breath and have no energy but its not my kidneys

lowraind profile image
lowraind

Often, topical, over-the-counter meds can help with the legs. I used to have severe problems and they have been mostly alleviated since I began using Penetrex. I have seen various different meds that do the same thing mentioned in ads.

Bassetmommer profile image
BassetmommerNKF Ambassador

Kingfisher,

The first thing I would suggest is find another doctor, preferably one who is a nephrologist or kidney specialist. Your leg situation might very well be related to your kidney issues. If your potassium is off or you are dehydrated or have an electrolyte imbalance or even nephropathy; these things could be the cause the symptoms your are experiencing. I am not diagnosing, but suggesting. If you are not sleeping well because you dance all night with your legs, you will be tired. My husband suffers from issues with his legs too. BUT, there is a chance also you might have anemia, which is pretty common with CKD. You need clarification from a medical professional based on your personal labs to figure this out. Before you take any supplements, ask your doctor. But many folks use a tad bit of melatonin to help sleep.

davita.com/education/kidney...

kidney.ca/document.doc?id=723

foundationforpn.org/what-is...

Barbee44 profile image
Barbee44

Your doctor is as uneducated as mine is. I'm switching. I've been battling with restless legs and hives after taking every medication prescribed for pain (I have spinal issues). She hasn't yet realized that those are symptoms of stage 3 kidney disease. Now that my blood test showed her this, she still hasn't connected the dots. My chlorestol is high so she prescribed a statin....nope, couldn't tolerate any of them. This is really frustrating. I can't even take something for a headache with out bruising, hives or restless legs all night long. My GFR is 50.

Bunkin profile image
Bunkin in reply toBarbee44

It amazes me that getting answers from doctors is like pulling teeth!

JimVanHorn profile image
JimVanHorn

My kidney doctor told me to use a certain product for leg cramps. I can't tell you what to take, because I am not a doctor, but ask your physicians. In my recovery many weird things happen and I have to get help, then they go away and something else pops up. So I understand, but there are answers out there.

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