Stage 4 CKD : Hi all, it's been A year I got... - Kidney Disease

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Stage 4 CKD

vishu84 profile image
39 Replies

Hi all, it's been A year I got to know that I hv stage 4 CKD ...that I hv pretty much accepted, I doing fine..no pain ,no symptoms as such but having a problem of haifall ..I don't know whether it s related to my condition or not...I want to know about spot urine protein / creatinine ratio importance and also my PTH is also high this time...what does it mean??

What to eat now n and how much..TIA

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vishu84 profile image
vishu84
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39 Replies
Bassetmommer profile image
BassetmommerNKF Ambassador

Hi Vishu,

You should discuss your diagnosis with your doctor. There are many factors to be considered and we do not diagnose on this site. Your hair situation could be caused by many factors also, and without knowing your total history, like your doctor would, I cannot even suggest.

You should be seeing a nephrologist, or a kidney specialist. Also see if you can see a renal dietician. Again, all things need to be tailored to your specificity and requirements.

But for now, take a look at the information in the topic list to the right side of this site. Under there you will see a lot of discussions about diet.

Good luck and come back with specific questions.

vishu84 profile image
vishu84 in reply toBassetmommer

Thanx a lot...😊

Drakula profile image
Drakula

Hey

Just like you, I have also accepted that I have reached ckd stage 4.

Last blood test in September showed gfr of 28.

I am a also not experiencing many symptoms except occasional fatigue.

Drakula profile image
Drakula

Normally in India, almost each nephrologist is asking patients to regularly conduct these tests... KFT, CBC, Urine Protein Creatinine Ratio, PTH.

UPCR is of good importance but more important is Albumin creatinine ratio.

Kindly visit your nearby lal path labs and ask them to do Morning spot albumin creatinine ratio test.

May Almighty bless u with best of health

vishu84 profile image
vishu84

Thanx for it wishes....may I know where u live in India...its grt to connect with same age group ppl....yeah my upcr test was pretty ok ...but recently it has gone to higher side...as I was careless in eating last Dec.

Drakula profile image
Drakula

Kindly don't be careless.

We are stage 4 people.

We need to be extra careful with the diet.

Believe me, diet plays a big role in determining the progression of CKD.

I was diagnosed in March 2012 with ckd. Mine is an autoimmune disease.. Lupus nephritis they called it.

I was able to maintain my creatinine level at 1.8 for 4 years when I was careful with my diet.

But in last two years, I thought that my disease is under control.. I became careless with the diet and creatinine level has jumped from 1.8 to 2.85

Kindly be careful with your dietary habits.

I don't know why but females have lower gfr at same creatinine level.

So you need to be extra careful.

Drakula profile image
Drakula

I live in Aligarh UP but my nephrologist is practicing in New Delhi.

I visit him after gap of three months.

May I know the name of your Doctor?

vishu84 profile image
vishu84

I consulting Dr Vijay Kher...sits in Medanta...who is it doctor??

Please let me know your daily diet routine and what is your water intake??may I know ur name..if u really comfortable sharing it..

Drakula profile image
Drakula in reply tovishu84

May I know the name of your specific kidney disease?

Mine in lupus nephritis grade 1V,an autoimmune kidney disease.

SLE caused it.

Duffuse proliferative glomerulonephritis to be more specific.

Drakula profile image
Drakula

Great.... What a co-incidence.

We are seeing a same doctor.

I am also consulting Dr Vijay Kher... Medanta mediclinic...

A year back, he relocated to Fortis Escorts but now he is back to medanta.

Drakula profile image
Drakula

And sorry for replying late.

I am very tensed these days.

Dr Vijay Kher is a good doctor but I am considering taking second opinion. He never mentioned any specific diet.

I generally drink 3 litres of water on a daily basis.

My creatinine is continuously increasing.

vishu84 profile image
vishu84

Yeah he don't give specific diet but u can consult to a nutritionist ...they will make a proper diet chart acc to ur stage ....

Thumb rule in diet

Take calculated protein according to Ur body wt...

Limit processed food

Limit salt

Leach veg if green( spinach )

One of the most important thing ....don't stress urself....be happy alwaz

Drakula profile image
Drakula in reply tovishu84

What is the cause of your specific disease?

vishu84 profile image
vishu84 in reply toDrakula

Missed this ....

Yeah cause of disease is not clear yet in my case...as my parents and grandparents do not hv CKD and I don't hv diabetes and BP problem...I have not got biopsy done to rule out what is this actually

But in ultrasound and nuclear test it shows that I hv a scar in one kidney little smaller in size

vishu84 profile image
vishu84 in reply tovishu84

My egfr is 25

Drakula profile image
Drakula in reply tovishu84

Do you experience occasional pain in kidney place on the backward side?

vishu84 profile image
vishu84 in reply toDrakula

Initially when I got to know about CKD , that time I hv experienced slight pain on kidney side but as such no pain

Drakula profile image
Drakula in reply tovishu84

I am unable to figure the reason why Vijay Kher Sir don't ask you to conduct renal biopsy

Drakula profile image
Drakula

Great insight

Listen

Would u please suggest me any good nutritionist?

Whom u r consulting?

Drakula profile image
Drakula in reply toDrakula

What is the name of your nutritional specialist.

In which hospital he sits?

vishu84 profile image
vishu84

I hv once shown to some nutritionist who sits in Ganga Ram hospital Delhi as my first doc to whom I had consulted initially sits there...Dr Manish (nephrologist)

Drakula profile image
Drakula in reply tovishu84

Why u shifted to Dr Vijay Kher?

Was Dr Manish not good enough?

vishu84 profile image
vishu84

I don't know her name but she s the HOD of nutrition department

Drakula profile image
Drakula in reply tovishu84

Thnx a lot

vishu84 profile image
vishu84

May I know ur name please ???

I m thinking of making a WhatsApp group for a Indian ppl having CKD so that we can talk and share our queries and suggests that will useful for everyone.....

Drakula profile image
Drakula in reply tovishu84

I don't know any fellow Indian in my frnd circle who is having ckd.

It is pretty tough to locate fellow ckd patients in India.

I pray Almighty to save everyone from this situation. This disease is scary and can give u nightmares.

I mean we r living in a constant fear.

Uncertain future

Drakula profile image
Drakula in reply tovishu84

I already have you my contact details.

Drakula profile image
Drakula

I am atif , PhD scholar in human resource management

vishu84 profile image
vishu84

Ohhk dats grt ...I am a consultant pedodontist ( Dentist)..

Drakula profile image
Drakula in reply tovishu84

Great

I don't know why I am that much tensed

vishu84 profile image
vishu84

Hey listen...Atif just be calm and don't worry about future....just live it healthy and happy...follow the diet and do some excercise light one ....enroll urself in yoga n meditation..it will calm it mind and make I strong....and believe me there are ppl who are living with this disease having stage 4 and are stable for so many years...so just relax...

Drakula profile image
Drakula in reply tovishu84

Future concerns are always on my help.

I am not able to help myself

Drakula profile image
Drakula

What was your last spot urine protein creatinine ratio.

vishu84 profile image
vishu84

It was less than as it shows now...it was 1. Something

vishu84 profile image
vishu84 in reply tovishu84

I can't find ur number .. send me again

Drakula profile image
Drakula

Check your UPCR test.

What was protein total?

Drakula profile image
Drakula

Has he recommended Urine RE?

AshPan profile image
AshPan

Hey! I am new entry into CKD4. Things are bit complicated on my side too. I am a journalist. Have you been successful in making a renal support group, if yes, do add me too plz

Drakula profile image
Drakula in reply toAshPan

Sorry

I am seeing this message after months.

Hope u are in good health.

No we were not able to make any group as such.

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