Welp, I'm 2 weeks away from this transplant. I could not feel any less prepared. I woke up this morning to a phone call from my PD nurse saying that I had been referred to an ENT specialist because I had a mild infection in my nose (that has since cleared up I might add) and the surgeon is worried about putting me on immunosuppressants. I have about a week to get cleared since I start the first imunosuppresant a week from today and I am about to lose whatever sanity I have left. I also got to spend a night in the ER because my hernia decided to pop out and not be able to go back in. Basically anything that could go awry has and I'm surprised the surgery hasn't been cancelled. I'm trying to do all of this while getting ready for finals, so needless to say I'm cutting my losses and hoping for the best.
I will say that the stress has gotten to me and it shows. I look physically ill most of the time and I spend a lot of my day either sleeping or attempting to get things at least partially done. I find it ironic that my transplant team was concerned about my mental health being a factor in my candidacy for transplant, when they knowingly worsen my mental state by throwing things last minute into play and expect me to be nice about it and just do what they say, no matter how impossible the request seems.
I just keep puttering along and aim to cross one thing off of my list per day. Today it was updating my calendar. Anything else done is a bonus in my book. I haven't even thought about packing and told myself not to worry about it until next week when school is over. It's only 14 days away until I get to start a new chapter in my life, but first I gotta get through the hard part. Good vibes would be appreciated!
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Ladybug_05
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Your get there ladybug it's a hard process with high and lows and it's the unknown that scares us all so try and stay strong you will get through this your new chapter is very close.
There keeping a close eye on you having a transplant is a big physical and mental thing to go through.
Just take each day as it comes deal with that day and then move on to the next.
We are all with you and thinking about you.
Be open to you loved ones and friends learn on them you will need them. Tell your consultant how you feel it's best to be open.
If you are in the hospital, you are in the best place as they are medically prepared to deal with any challenges that may be put before you on this journey..
Your feelings of stress and frustration; forget fear are absolutely normal.
I agree with Charlene, let friends and loved ones see you through this time....and
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