Well, in the blink of an eye my transplant was postponed to I don't know when. Thanks to matters out of my control, I got a uti and needed antibiotics. Anything that could have gone wrong, has, and now I get to play the waiting game again- only this time with a suppressed immune system. It didn't matter that I took my cranberry pill every single day, took my meds, drank a stupid amount of water every day and whatever else they advise you to do to prevent these things, I still got one. I am devastated.
The worst part wasn't the crying and the migraine that followed, or the back and forth with my dialysis team trying to figure out where to go from here as I'm bumbling through tears while waiting for my transplant team to make a decision. It wasn't even telling my friends and family members the news- it was the fact that I did everything right and things turned out this way anyways.
The closest thing to a potential date is a month away, assuming my donor can even do it. This last month alone has been one of the hardest I've had this year, since my entire body just decided to break. My family keeps telling me that everything will be okay, but they're not the ones going to the doctors sometimes multiple times a week because something happened. I've gotten to a point where I feel like I'm losing my mind. It's basically a juggling act that I can't seem to win, and I'm tired of losing. Hopefully I'll know more tomorrow, but until then, to hook up to my machine I go.
Written by
Ladybug_05
To view profiles and participate in discussions please or .
I’m so sorry to hear about what’s going on. Even though that’s a pretty crappy thing, sometimes you have to be grateful for moments like this. Silly to hear, I know. But moments like this let you look back on the days where you woke up and experience the day without ever thinking it’s the best day ever for you. I don’t know how you are about the topic of God, but maybe God knew something bad would of happened after the transplant and he wanted to save you from going through the trouble of whatever that may have been. I’ll be sure to keep you in my prayers. Keep your head up. Keep pushing on. ❤️
I do feel for you and an sad that you are going through this difficult time.
This has happened to me twice but not with a living donor.
The second time was two weeks ago, all set gowned up and ready to go, my surgeon came to see me and I could tell from his look that it was going to be a no go.
We do have to have faith that our renal surgeon makes theses decisions for us and not to risk a bad outcome.
I still remain positive and know that a donor organ will be available.
Ladybug, what a difficult thing to go through. But if you had the transplant, it probably would have been very bad for you with an infection in your body. You did not lose, you probably saved your life. You said it may go next month. I am sure the juggling and ups and downs are exhausting. You are a warrior and you will find the strength, I am sure.
Oh ladybug I'm so sorry to hear you have had such a disappointment and can't imagine how hard that was. We know the doctors want you really health and in the best state so they have done it for the best reason to make sure your as fit as can be but it's still hard and frustrating and then your not feeling a hundred percent either and running from one appointment to another.
I'm thinking of you and you have every right to be upset and teary let it all out don't bottle it up. Just know we are all here for you to support you now and always.
So sorry for you. I also am thinking along the lines that, if you had gone ahead with the transplant, something worse might have happened. Kind of like missing the plane that crashed. Try to be positive and have hope for the best!
I’m so sorry to hear that Ladybug but it’s going to happen, just maybe not when you thought, but you’ll get there! I know it seems overwhelming, but you’ve come this far.you can do this. I’m praying for you to find the strength to get thru. With God, all things are possible. You are not alone❤️
Oh, I'm so very sorry this happened. My thoughts and prayers are with you during this difficult time. I will send out positive thoughts that your body heals quickly and a new transplant date is set soon.
So sorry to hear but it seems that the Universe may be protecting you from a bad transplant. I am a Buddhist and will chant for you. Just keep in mind that you've come this far and you'll eventually succeed.
Thank you everyone. I decided to take a few days to process this change and I'm still notifying friends and family. Thankfully, the antibiotics are working as they should and I'm feeling much better! I'm hopeful to be getting a new date soon, and I'm trying to take on a more positive attitude and use this as an opportunity to get in a better headspace and healthier place overall before my surgery. As frustrating as it was, I know it was for the best. I'm a firm believer that everything happens for a reason, and apparently I'm meant to get a New Year kidney instead of a Christmas one!
Again, thank you all for the support! I deeply appreciate the reminder that this is for the best and better times are on the way.
join natural kidney journey on facebook...i have been able to raise my gfr from 26 to 41 in less than a month...that was my situation it is different for everyone...this fb group is dedicated to changing your diet...supporting your goals and so much more...it is admin by a couple where the wife was able to get her husband off of dialysis...she raised his gfr from 3 to 39-41...he has been off dialysises for over 14 months...there is another person on site that achieved that same thing...plus numerous others who have raised their gfr significantly by diet and determination... here is the link... tps://facebook.com/groups/natural... answer the 3 questions when you click on the site to join or you will automatically be deleted...
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Bad news...
Feeling isolated & depressed
Apprehensive about meeting the Transplant Team in March
