Iga nephritis - gluten free diet

[kc4t]

Hello,

I was just wondering if anyone else had heard or knew of a strong link between iga nephritis and gluten intolerance or other digestive issues? I'm receiving treatment to fix my immune system attacking my kidneys and have been reading up on the mechanism of activation of the iga in the body. Some of the literature is definitely over my head but there does seem to be the possibility that diet can influence the chain reaction that sparks the igA to start overreacting.

Has anyone else suffered from iga and been gluten intolerant? Did you find good results or no results from dietry changes? Interested in learning about anything remotely relevant!

I don't get much help from the consultant who says 'eat healthy'. A bit of a broad statement.... But I've cut out salt and am eating veg for breakfast lunch and dinner where ever possible. I've been looking into the AIP diet as well and at the very least the recipes are delicious.😀

Looking forward to any other advice or opinions!

KC

[Bassetmommer NKF Ambassador]

Hi, I have some links here that had information that might be helpful to you. mayoclinic.org/diseases-con... and kidney.org/atoz/content/iga... Seems there is a link to gluten intolerance as well as other issues. Diet can impact kidney issues so do as much research as you can on what to eat to help the situation.

[kc4t in reply to Bassetmommer]

Thank you! I will look them all up

[Zazzel]

Hi there, Yes, I have IGA Nephropathy and multiple food intolerances and allergies including an intolerance to gluten. Yes, removing gluten and other intolerances from my diet has helped slow down progression. Several studies were done in the 90s showing the removal of gluten and sometimes dairy can help slow progression. I will dig up the links and private message you later today with more information.

[LuvsPixieDust]

Hey, this is my 1st post ever on this message board! I was just diagnosed with IgA. My doctor did not say to eliminate gluten. He did say to avoid meat and salt. I am very overwhelmed because I need more concrete do's and don'ts. Meats--does that mean red meat or all types of animal proteins? I have never felt like I have a gluten intolerance,but then again I did not feel like I had IgA.

[kc4t in reply to LuvsPixieDust]

Yup overwhelming seems to sum up my situation too. Personally I've decided that my consultant simply doesn't know about nutrition. I'm currently trying to find a private nutritist to speak to who has some experience of autoimmune disorders and in the meantime I'm trying the aip protocol diet. At the very least it's healthy and nutritionally broad so I feel confident I can't go too wrong there. I never thought I had any gut issues but I can't deny that the treatment of predict has made everything gut related so much better there must have been so much going on for so long I just normalised it all. I'm trying really hard to learn to listen to my body. It's difficult but hoping it will mean. can manage everything better in the future

[evafay]

My daughter was diagnosed with iGA at Age 4. Her dad is a dr and research scientist professor and I am a health professional and Health coach who loves to research different options.

After much daily testing with the pH of her urine associated with protein and hematuria we began testing different diet associates with food intolerance. We had skin prick testing done with an allergist first.

She responded well to gluten dairy soy and nightshades free diet.

Low or no alcohol is also recommended.

Anything to reduce inflammation and auto

Immune complex formation.

She is now 28 and still well but has some unusual floater in her eye and one dry eye at times which I suspect may be related to the autoimmune biochemistry.

Follow a low inflammatory diet

Check your Urine with a dipstick to see where the aggravation with diet lies.

Look for the guidelines for low inflammatory diet by Dr Mark Hyman who is a functional Medicine dr. He has videos online and some protocols.

My thoughts after twenty years of research and mothering a kid with iga..

Treat IgA as an inflammatory disease which if you respect the biochemistry needs of your body through diet and lifestyle can be minimised. This simple means NO gluten NO dairy NO soy and whatever else seems to aggravate. In my daughters case no oranges strawberries mangos or anything that triggered eczema. External Inflammation can be a sign of internal inflammation in my thinking. Eat fruit and veggies and whole foods. Take fish oil. Avoid processed saturated sugary foods. Simple Biochemistry respect if your bodies needs.

Feel free to comment and Correct from your observations. Being extreme with diet is necessary as we live in a world of inflammatory poor nutrition based cheap foods making people ill.

Good luck.