I’m about to be diagnosed with IgA Nephropathy, I’m 28 , so scared of the fact shorter life expectancy !
I feel life is nothing, wanna to raise my kid but I don’t know when life gonna decide to say bye bye
I don’t wanna to suffer dialysis or looking for donor!
It is hard on me as it was hard on others that got same diagnosis!
Thank you all
You should talk with your doctor about your condition, because the progression of the disease depends on many factors. Treatment aims to slow the process of kidney disease. Everyone is different in how they respond to treatment.You can find more information on: kidney.org/atoz/content/iga...
Yasminkidney,
Please, speak to someone about your feelings, like your doctor and soon. Being diagnosed is scary, that is true, but it certainly is not the end of the world. You do not say what stage you are. There are so many factors about CKD that one diagnosis does not fit all. There are many of us here living full and wonderful lives with all different stages of CKD and diagnosis.
When I was told to prepare for dialysis a year ago, it truly scared the your-know-what out of me. I was pretty depressed and ANGRY!
But I became educated on the disease. I talked to others. Making changes in my lifestyle stopped the progression and I am not going on dialysis (and I hope not for a long time) I had a peer mentor through the National Kidney Foundation who called me and talked me through it. It is free and I recommend it for you. Here is the link:
There are many factors in your future and they look scary because you do not know about them. Just remember, you are not alone.
Now, go hug your child. That is the greatest gift given to you.... Show your child what a warrior you are.
Do you mind using some local herbs to cure the problem?
It worked fast.
Platinum.... what herbs CURE kidney disease?
none! so don't try, it will make things worse.
Not sure where you got the idea that having a kidney disease will shorten your life expectancy? Certainly if you do nothing.....The most important thing when you get this diagnosis is to do everything your doctor tells you. Keep your blood pressure under good control, keep hydrated, follow a renal diet, do labs as ordered and take all prescribed meds.
Many on this site can attest to the fact that by doing all of this, especially following a renal diet, you can prevent the progression of your disease. Why wouldn't you want to make a few changes?
I know it is a shock to find out you have CKD, but why wouldn't you want to do everything possible to continue with life!
I received a kidney transplant in 1999 and do not plan to check out any time soon. I believe in living and enjoying life to the fullest.
You need to get some correct information from your doctor. The more educated you are regarding your CKD, the less scary it becomes. You also need to make up your mind that this is your life now and you need to do all that is possible to make the most of it.
Please know that you are not alone! Everyone on this site is either going through the same thing you are, or, like me, has had a transplant and considers it a true GIFT OF LIFE!
Please get some help and make the changes necessary to be healthy!
Keep us posted
Hello - my husband was diagnosed with kidney disease at age 30 and he is now 73. Doing the things mentioned by those below, including finding a nephrologist preferably who is connected with a transplant hospital will allow you to have a long and happy life. My husband has had 2 long lasting transplants the last one from myself. One of the keys is to take each day one at a time and take advantage of all the wonderful resources available to you. Best of luck to you and your wonderful family !!
I can relate to you. 3 years ago I was diagnosed with an extremely rare kidney disease. Fibrillary glomerulonephritis. I am 49. Dealing with the emotions is very hard. Knowing that there is no cure and no treatment is devastating. It changes How you see life. Going to the doctors and have them say it's just a waiting game until a transplant. But I try to think positive daily. There are some days that I am sad about it. I try to keep busy and not stress about it and i always remember that someone else out there has it worse. I cherish everyday.
I was diagnosed with CKD nine months ago. Being only 35, I am devastated; especially learning of the shorter lifespan. But, you know what? Stay strong! I am going to do my phd next January. Life is about to start a new chapter.
Primary Membranous Nephropathy with Nephrotic syndrome 
Aggressive IGA neuropathy 
IgA kidneys and Having high cholesterol not related to my diet. 
Looking for positive 
Seeking advice and comfort, please help. 
