Abra cadabra

[Atlproctor]

I hope this finds everyone well.

It's kind of a rainy day here in Georgia.

Let me come to my point to see if there are any of you who might be going through the same thing as me.

Every once in awhile I get what I've been calling over the years "spells".

I suddenly become unbelievably sleepy.

I can barely walk.

This is not narcolepsy, seizure or some kind of weird sleep apnea.

I have to get to a bed to lay down.

I can't move. I can adjust my body and pillows. All I can do is lay there and sleep.

There is no advance warning of this happening. It's not caused by anything environmental, physical, dietary, Rx, herbal, and yes all my docs know.

I sleep really hard for at least 3hrs.

My husband witnessed this many times.

I have been having these "spells" since I was 9.

My parents figured I would grow out of ot.

[kycmary]

Sorry to hear about that, I have had spells where I get sleepy & lay down & sleep for 1-2 hrs. Then up for 1-2 hrs. Then back to bed, goes on all day & night but that is after I was slipped Benadryl.

[Atlproctor in reply to kycmary]

kycmary, I hope things are better now.

[Amore55 in reply to kycmary]

kycmary, You are in my thoughts every day. I hope you are coping okay. Sending you love.

[mrsmike9]

Are there any doctors who can help?

[Atlproctor in reply to mrsmike9]

Mrsmike9 how are you?I am ok.

I have seen all different types of doctors.

The consensus seems to be since I'm not hurting myself or any others just go with the flow.

[bxrmom]

Have your drs done a sleep study to see if they can figure out what is going on? I'm sorry your are going through this, please keep us updated when you can.

[Atlproctor in reply to bxrmom]

bxrmom how are you feeling.I am ok.

My "spells" don't come daily.

I am not sure if a sleep-study would reveal much?

I will keep everyone updated.

[bxrmom in reply to Atlproctor]

Glad the spells don't happen daily. Today is a good day, though kind of tired today. I may take a nap later...time will tell.

[Atlproctor in reply to bxrmom]

I LOVE naps.My dog Xüe (sue) does as well.

He takes at least 3 per day.

I am hoping someone will see my post and be able to give me some information. GE

[CatsandCars]

Sounds almost like some weird form of a seizure. Sadly, I cannot shed any light on that for you. I hope you get to the bottom of it, Atlproctor.

[Atlproctor in reply to CatsandCars]

Thank you for your response. I'm going to look into that and see what I can find out. Enjoy your weekend.

[CatsandCars in reply to Atlproctor]

Thanks, you too!

[Amore55]

I get so exhausted that I crawl into bed and just can’t move at all. But it doesn’t happen very often, maybe once every 3 weeks. Just sheer exhaustion. Completely out of gas, nothing left. I don’t like to get to that point and try to avoid it, but sometimes I just don’t have any control over it. I can’t even lift my arms to get a drink from the nightstand when it happens. Very discouraging.

[Atlproctor in reply to Amore55]

Good morning. How are you feeling? I am okay. I thought about the exhaustion thing. But this has been going on since I was 9 years old. I'm sure when he's ready G*D will reveal to my mind exactly what this is.

[HarryBraynes]

Hi… I can strongly identify with your symptoms. I have had the same symptoms… sudden onset of fatigue where I must get to a bed… I must lie down and sleep… my body suddenly feels so weak I can’t even lift a piece of paper. I have been successfully treated for this problem for about 25 years now - sleep apnea. I have to say… your symptoms sound exactly like what I was experiencing before getting a cpap (continuous positive air pressure) machine to treat the sleep apnea I was diagnosed with. Have you gone for a sleep study? How do you know that you don’t have sleep apnea… it really does sound to me like you have the same thing I did before I got the machine.

Sleep apnea causes certain muscles to over-relax causing blockage to the air passage resulting in a lack of oxygen leading to excessive tiredness and weakness. Not treated… lack of oxygen can lead to brain damage and stroke. It is a very dangerous disorder that many doctors are not properly diagnosing.

Just so you know… I have met 2 other people who were misdiagnosed by their doctor but had the exact same symptoms I had (just like you). I recommended that they at least go for a sleep study test which they both did and both were diagnosed with severe sleep apnea. They both got sleep apnea machines and both have since been symptom free.

Please look further into this. It’s worth it to at least get tested. It really is a matter of life or death.

Most Sincerely and Seriously

Harry

[Atlproctor]

A sleep study might be a good idea