I was recently approved by my insurance for Ocrevus. I thought Yeah!!! Then I find out that It won't pay for everything. I have to come up with a copay of $315 which is the copay for any hospital visits. Then I found out that the infusion center that is only 5 miles from my house was just approved to do Ocrevus infusions, but my Neuro won't approve it because if something happens she or a colleague wouldn't be able to get there. So now if I want to get the infusions I have to drive 2 hours to the infusion center, get the infusion, drive home for 2 hours & pay $315. Mean time my husband, has to find something to do during the infusion, which wouldn't be a bad thing except he is disabled also & can barley walk due to back problems and enlarged cyst on his pancreas the size of an orange. When at home he will lay down for 30 minutes & get up move around & do something around the house, then sit for awhile & then go lay down again. He is in major pain 24/7 & there isn't anything they can do for him.
OK, I've had my rant. Thanks for listening. I know things will work out for the best, they always do, sometimes I get impatient. There's times like this that the solution seems so easy and the best way all around and when it doesn't work out that way it just plain frustrates me. It's also frustrating when insurance and doctors think they know you better than you know yourself. I can understand my Neuro's point of view, especially since this would be the first infusion and no body knows what will happen. So that being said I am waiting to see if I have to pay a copay at the other infusion center & if I do I will try to see if I can get help for that. It will all be good in the long run.