Good morning my beloved ms family. All are well today. Slept well last night and are well-rested today. Eager for what might lay ahead. I have been working on my sleep, trying to get it up to eight hours and I achieved it last night. Been going to bed early, 9.00 pm and listening to a little guided sleep meditation. Of course, I used a catheter to drain the bladder so I do not wake up three times to urinate. Brothers if “YOU” are waking up often talk to your doctor. Sisters trust me it helps. Botox injections also help. She who must be obeyed is having them done, they last her about 9 months and she says they are VERY helpful.
This of course is an excellent segue into today's chat. “YOU” are not in this by yourself. Build a team, change out your members as need be but do not isolate yourself and be lonely and learn nothing. Remember the point of this exercise ( our disease) is to learn. I accept that this might be hard to accept at first, but perhaps as the years go by and your journey continues “YOU” will find this has a grain of truth to it. We learned about Botox for female bladder issues from an older lady who had been doing it for many years. We would never have thought of this, how many other things might help that “YOU” as an individual might not have thought of?
Yes, without a doubt, “YOU” are ultimately responsible for you Relapsing-Remitting ms (RRms) and yes it is up to “YOU to listen. To learn and adapt your knowledge to your situation. As I have said, nobody else will do it for “YOU”. This incurable chronic disease is yours and only yours. Build a team around yourself to help “YOU”. In this ms family, I have several family members that I write to daily. They build me up, keep me strong and occasionally give me ideas to write about for “YOU”. Without them, I am not sure I would have been able to write over 1000 pages for “YOU”. I have a team, for which I am grateful, build yourself one. On the medical front, a General Practitioner(GP), a neurologist (Neuro), a therapist are good starts. This is not a take two aspirin and have a nap kind of disease. Be serious, get a good team, do not be afraid to change them if they do not meet your needs. I have had five different Neuros, mostly because I have moved. But changing them is not an insurmountable fear. I have the one now because I am comfortable with him, but he is older so he may retire soon and I will need to search again.
Do not be afraid to change. Keep your own personal records, know your body, stay strong and be wise. This is an individual disease, we all are a little different, “YOU” are different to me, but give yourself some support, a team to help “YOU” through.
Royce ( your miswrite and Brother)
Together perhaps we can make it through this, but YOU have to try first.
