Good morning Community Family,. It's Monday morning, I just gobbled down my ritual of 5 pills (Nurtec, Midodrine, Lasik, Vitamin D and Aspirin. Last but not least.... Copaxone Injection 😪. I think when I take my injection it makes me "hyper sensitive" - in other words: I can be "cry baby.". A little sensitive and don't like to feel like I have to explain myself all the time. We know our struggles (i.e. injection site pain, difficulty sleeping etc.). I guess today I am bothered because my husband (degree in Social Work) can do and/or say some of most irritating things and doesn't realize it came off offensive or abrasive!!!!!! I know my shortcomings and even make fun of myself being a "Senior Only Child" spoiled at times. Being sick often makes you reflect on how you are treated or lack thereof. One attribute that I do have because of not having siblings is I'm caring and try to love, respect everyone on God's blessed 🌎 earth. MS is our life, ppl and family sometimes would be blowed away if they traded places. Thank you for reading my "pity party" story today..... feel better already 🙏. Holiday Greetings. NeeC
Is it Just Me????: Good morning Community... - My MSAA Community
Is it Just Me????
I remember hating those shots, but I did those in the evening and slept shortly after. I would usually have something funny on TV and sip wine while I waited for the pain to subside. There are times that it would be easier to trade bodies for half a second, instead of trying to explain.
Absolutely! I take my injections in the morning; and yes I have difficulty sleeping. I may try at night and see if it makes a difference. Appreciate you ❤️. NeeC
I hope you can sleep it off!
I took Rebif for a year and did my injections at night as well. Took Ibuprofen 800mg before each injection, otherwise, I would have flu like symptoms. I only missed taking Ibuprofen once or twice. For the injection site irritation, the Rebif nurse told me to put Preparation H at the injection site. I got generic and it did seem to help. Her other suggestion was to put a spoon in the fridge and then put it over the injection site for a few minutes after each injection. We all need pity parties some days!
Thank you for those wonderful suggestions; especially the spoon! I have injection site "battle scars" - that feel like medium size marbles 😪 Appreciate you sharing. Blessings. NeeC
It sounds like a few different factors are at play. Have you just told your husband that when you say ______________, I feel ____________?
My husband is really wonderful but once in a while he will say something that makes me feel bad. I have to tell him what he shouldn't say, and why. Then I've had to explain that he needs to say he's sorry or I will continue to feel bad. I've joked with him that he's "apology deficient" and that I thought we'd made progress with it over our marriage, but sometimes he needs reminding!
Yes, you may be feeling sensitive, but that doesn't make you a crybaby. Calling yourself one isn't being very kind to yourself. We are all generally very hard on ourselves compared to other people.
Such wonderful advice and insight you shared; l did talk (tell) him what he does (or doesn't do) makes me feel. He apologized and said he would work harder and he was preoccupied by his obnoxious supervisor. This "work from home" Pandemic - post is a real tradition. We have made a few jokes in reference to his 2 1/2 countdown to retirement. I told him to revisit hobbies; old and try a few new so I don't have to put him on the porch like Fred Flintstone does Dino!!! lol. Thanks for your support ❤️. NeeC
It's good that you talked to him. I do feel bad for my husband because I am so sensitive, and being married to me and my MS can be really hard! I also don't know what I'd do without him.
Amen to that my friend. My does the laundry, sometimes cook (good at it) and food shopping. MS ain't no joke and I appreciate it immensely.
Mine, too! We drew the crappy straw getting MS, but it sounds like we both won the husband lottery.👍
Yes we did 😊
😅
I understand that.
One is always reminded of MS. Injections are another reminder as is walking,etc.
"ppl and family sometimes would be blowed away if they traded places."
You're not kidding.
Yes my friend!
Sometimes you just need to spill over the things that bother you. I'm glad you did. (BTW, I was so grateful when I had a bad reaction to Copaxone. I hated giving myself shots!)
I understand my friend, because of my "low blood pressure" Neuro thinks it my safest choice. Well revisit ❤️. Blessings always!
Love that! I'm sure you are in good company as far as hating injections.😁
I took Copaxone every day for only 2-3 months. Unfortunately, I experienced all of the side effects. Pain and swelling at injection site, nausea, sleepless nights and liver damage. Oh the crying was every single day. I had nurses come to my home. I talked to them on the phone, but nothing helped. So, my neurologist took me off. I had taken Avonex injections for 2 years prior to Copaxone. Had to stop taking Avonex due to liver damage. No other side effects from using that DMT. Tolerated ok until the liver issue. I hope you will get better results soon. I decided not to take any more injections but would wait for something in pill form to manage my MS. Third DMT ended up being Tecfidera. Taken for 7-8 years until insurance decided not to pay for brand name and wanted me on generic. My neurologist said NO and put me on Vumerity (DMT #4). Seem to be tolerating Vumerity same as Tecfidera. Doing ok. Wishing you well.
Thank God! I pray 🙏 your continued positive health with this medication. Peace and Blessing's.
trying to keep my cool
It can happen to anyone...
Just me ...
