Post 719 2021 YES, let's do it 1Jan 2021 - My MSAA Community

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Post 719 2021 YES, let's do it 1Jan 2021

RoyceNewton profile image
8 Replies

G'day beloved ms family (that is YOU), Let all of us try hard to make this a good year for our family. The world is doing its thing, trying its best to tear itself apart. Do your absolute best to ignore as much of it as "YOU" can. I have cut my news watching down to a few hours a day and only read the business section of the newspaper, believe me, this is a stretch for me.

Concentrate on your ms. Disease-Modifying Therapy (DMT is a great start. Take the strongest that "YOU" can lay your hands on. If "YOU" take one of the older self-injection medicines. Turn to face a mirror, do "YOU" see your Butt, Posterior, Arse?

Inject there, the fattest part of your body. I do not have a fatty stomach, if "YOU" do inject there as well. I managed to rotate 15 or so injections a month in my butt for years. I did not like having it done, but I did it. Mother and she who must be obeyed were very handy for this. They put up with my complaining for years, and boy did I complain. My annual Magnetic Resonance image (MRI) test still showed activity, I knew that I was very slowly going downhill BUT. I accepted that as part of the disease. No medicine then or now will stop it, BUT, I did my best to slow it down. Today 20+ years later I stand at my standing desk to write this, will walk to the mailbox down the street to get the mail and spend time at the gym. Admittedly not as much as I like, this gym mask nonsense is really annoying.

The point is that "YOU" can do things. ms today does not always mean a wheelchair and the things that go with it. "YOU" most certainly can have a long and fulfilling life. Just because "YOU" have ms do not give up on yourself. 20+ years ago I went to my first ms meeting, ever body was an overweight Lady in a wheelchair. We shall not mention how much this terrified me. For "YOU", in 2021 ms does not have to mean that to "YOU". There are disease-Modifying Therapies (DMT)'s, there is new research being done. We are still I feel a long way from a cure, but do be honest with yourself. What exactly has our species cured, I think not much and as much as I hate to say it. We are unlikely to be a high priority for the worlds researchers.

Never the less "YOU" CAN do this. "YOU" can live a life with ms. It is hard at times, BUT, "YOU" CAN do this. It is within the rules to cry whenever "YOU" need to, BUT it is against the rules to give up. Take one step, pick your DMT. Start taking it. There will be side effects. This is serious medicine for a serious disease. "YOU" are likely to suffer loss, pain and betrayal. Stay true to yourself. Find something that makes "YOU" happy. Live your life in spite of ms. Do NOT STOP BECAUSE of ms. Find a good diet, one that "YOU" will stick to for 20+ years. Accept change, Constantly adapt. Wear your protective underwear, just in case. Do not be embarrassed by a fall, pick yourself up and carry on. Try to have a sense of humour, "LAUGH".

Royce (your ms writer and Brother)

NEVER give up, YOU can do this

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RoyceNewton profile image
RoyceNewton
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8 Replies
Morllyn profile image
Morllyn

Happy New Year Royce!

carolek572 profile image
carolek572CommunityAmbassador

Happy New Year, Royce! :-D

Be Safe , Be Well, and adaptability is key, always! :-D

twooldcrows profile image
twooldcrows

said so well ...i agree 100% don't give up ..NEVER IS A GREAT WORD FOR US WARRIORS...love to all and much happiness...we make ourselves happy ...

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

And to you and yours as well

M2307 profile image
M2307

You made this New Year’s Day for me , how wonderful you have sprinkled light to us all .I can do it !!!!

Thank you and happy new year🙏

Sandydemop profile image
Sandydemop

I like the constantly adapt part. Doing my best. Wish everyone a happy healthy year. keep your mask on !😷

2littletime profile image
2littletime

Thank you, Royce & happy New year to you & yours. 👍💖

BigMar7 profile image
BigMar7

Royce, another great letter to start the new year. Happy New Year

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