Explaining MS...: This is one way to... - My MSAA Community

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Explaining MS...

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’32 Replies

This is one way to explain it... How do you explain it?

My girls actually looked it up on the mymsaa.org/ site! Im so proud! πŸ™‚ πŸ’• Now when anyone asks and l say, lts like taking the remote and having 1 good battery and 1 bad... Sometimes it works, sometimes it doesnt! πŸ€£πŸ˜‚πŸ€£

How do you explain it? πŸ€”

πŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
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32 Replies
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RoyceNewton profile image
RoyceNewton

Excellent used this for years,brillint analogy.

Morllyn profile image
Morllyn

I say that it is a neurological disorder, if they want more then I go with the stripped wire analogy. Most don’t ask for more though.

CynthiaS profile image
CynthiaS

Brain damage is my response and hopefully my brain will rewire itself. SERIOUSLY 😜πŸ€ͺπŸ™ƒπŸ˜πŸ˜„πŸ₯°

falalalala profile image
falalalala

MS?? I'm drunk!😜

Actually, I can't remember the last time I had to explain.

When I was using a cane most of the time, I'd sometimes get asked why I was using one. Saying I have MS usually makes them slink away.😜

When I am out in the wheelchair, nobody asks about my condition, They might stare as they try to figure out what's wrong with me.πŸ˜…

I saw this shirt on Amazon recently and have to have it. So many colors to choose from!πŸ˜‚

t shirt
Helpmeup profile image
Helpmeup in reply to falalalala

You made my day! That t-shirt "always give up" is so perfect! Laughed my butt off. Thank you. πŸ˜‚πŸ˜‚πŸ˜‚

falalalala profile image
falalalala in reply to Helpmeup

You're welcome!I too, had a good laugh.:)

CatsandCars profile image
CatsandCars in reply to falalalala

Perfect shirt for when you're too tired to be inspired!πŸ‘

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to falalalala

πŸ€£πŸ˜‚πŸ€£ OMG l love it! πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala in reply to Jesmcd2

I'd like it in orange.πŸ˜‚πŸ˜‚

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to falalalala

Wear it to the next ms walk! πŸ€”πŸ€£πŸ˜‚πŸ€£They wont ask for my help againπŸ˜‚πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala in reply to Jesmcd2

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Tazmanian profile image
Tazmanian

My remote never works πŸ€ͺ

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Tazmanian

Right? πŸ€£πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

NorasMom profile image
NorasMom

I tend to use that ugly old table lamp from Great-Aunt Mildred at your mother's house that you can't get rid of in spite of the fact that it overheats, shocks people, or stops working without warning. Either that or a frayed extension cord.

Helpmeup profile image
Helpmeup

Yup. The frayed exposed lamp wires is my go to explanation for all my short circuiting issues. Most folks don't ask for much detail after I say "M.S.". I just get that "look" if you know what I mean. 😜

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Helpmeup

Oh l do know that look! πŸ™ƒπŸ€—πŸ’•πŸŒ 

Cutefreckles72 profile image
Cutefreckles72

Now that is a good way of explaining it. πŸ‘

kdali profile image
kdali

"Mommy's immune system gets confused sometimes and thinks my brain and nerves are bad guys, like germs, and attacks them. This makes me sick for a while and leaves boo boos on the inside of my body you can't see. My doctor can see them though, by taking cool pictures of my brain. She also gives me medicine to try to teach my immune system not to hurt me."

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kdali

πŸ€—πŸ€— Love that! πŸ€—πŸ’•πŸŒ 

Helpmeup profile image
Helpmeup in reply to kdali

That's the best explanation ever! Love it! πŸ€—πŸ₯°

kdali profile image
kdali in reply to Helpmeup

Thank you! πŸ₯°

Neworleanslady profile image
Neworleanslady

love that shirt!!

mrsmike9 profile image
mrsmike9

I don't remember the last time I had to explain.

hairbrain4 profile image
hairbrain4

That's a good way of putting it! I used to tell people to wrap rubber bands around their toes & fingers until it hurts & then strap 5lb bags of flour to each arm & leg, go without sleep for more than 24 hrs & then try to get on with your day.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to hairbrain4

πŸ€£πŸ˜‚πŸ€£ l like that! Thats about how l feel right now.. πŸ™‚πŸ€—πŸ’•πŸŒ 

hairbrain4 profile image
hairbrain4 in reply to Jesmcd2

I'm sorry you have to feel like that. My prayer is that everyone could have their MS go into remission.πŸ€—β€

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to hairbrain4

TYπŸ€— Tis just the extra stress tossed into the mix of a mess of a busy 3week sched. And lm a planner🀣 l like my lil duckies all ina row😐 Things are done on certain daysπŸ€£πŸ€£πŸ€—πŸ’•πŸŒ 

whwiechm profile image
whwiechm

I was an electronic technician for many years, sao the wire stripping works best for me.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to whwiechm

You were? Cool! Fix my TV! And my phone! πŸ€£πŸ˜‚πŸ€£ jokingπŸ€£πŸ˜‚πŸ€£ πŸ€—πŸ’•πŸŒ 

whwiechm profile image
whwiechm in reply to Jesmcd2

Sorry, not my area of exp[ertise. I can't even figure out all the things on my own smart phone.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to whwiechm

Right? Give them to teenagers to figure out! πŸ€£πŸ€£πŸ€—πŸ’•πŸ€ž

twooldcrows profile image
twooldcrows

great way to put it...love it ...thank you for the great way to describe it ...great going ...

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