MS

[LynnB18]

Hi my name is Lynn and I have secondary progressive MS. Now using a wheelchair all the time. There always seems to be a long list of things I can't do anymore and its not always easy to think of the things I can still do.

[TheAuthor]

Hi LynnB18

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you are feeling as well as you possibly can be today?

My wife has Primary Progressive MS, and was diagnosed just about nearly 4 years ago. She uses a wheelchair whenever she leaves our bungalow as she cannot walk more than a few steps. She uses a 4 wheeled rollator at home and just manages to get about with it but she has a lot of falls.

I want to genuinely and sincerely want to wish you all the best of luck.

All my hopes and dreams for you

Ken

[LynnB18 in reply to TheAuthor]

Hi Ken it is lovely to hear from you. I'm glad you and your wife can still get out and about. After about 3 days in I get very depressed. I'm awaiting delivery of a motorised wheelchair which folds down and should be able to go in the car. I went out yesterday with my two daughters and son-in-law and I felt so sorry for Stani as he was pushing me over the cobble stones at Covent Garden. He is so good. I send my very best wishes to you both Lynn

[TheAuthor in reply to LynnB18]

Hi again, LynnB18

I want to genuinely and sincerely wish you all the best of luck with your motorised wheelchair.

[IBIZA]

Hi sorry to hear that,I'm awaiting results to see if I have ms but no one seems to b telling me anything please tell me how long u waited for your results to come back and how did u get them.

[TheAuthor in reply to IBIZA]

Hi IBIZA, I am so genuinely sorry to read this and I sincerely hope that you get some really good test results! Usually a diagnosis with come form the results of your MRI scan (my wife's did). So you may gets your then?

All my hopes and dreams for you

Ken

[IBIZA in reply to TheAuthor]

Hi ken yes I definitely have ms as 3 different docs have told me from wat they have found on my MRI and lumber puncture

[TheAuthor in reply to IBIZA]

I am so genuinely sorry to read this and I sincerely want to wish you all the best of luck. Please take care of yourself.

All my hopes and dreams for you

Ken

[IBIZA]

I also get a pain in my left eye have done for ages then it went for ages and has come bk I read that its optic neurosis is this also associated with ms

[Hidden]

I hear your pain, I too have just too many things wrong with me mostly due to MS. I have SPMS and in a power chair 24/7. Sorry to say we have a lot in common.

[hedgehog60]

Hi Lynn , I was diagnosed w/MS in 1979 . It has taken so much from me but I try to not dwell on it as the depression is worse then. I'm new here so have lots to learn . We're in this together and I hope we can help one another. ❤️

[LynnB18]

Hi hedgehog60 how does MS affect your everyday life? My husband had to retire early as I had 3 falls over 3 days and couldn't cope being alone for 14 hrs a day when he was working. I stopped being able to put my feet back on my wheelchair after getting up from my riser recliner chair for example. We've now got an electric passenger seat chair for the

car which is so good. I suppose it comes down to adapting to changing circumstances. I'm sure we can help each other as just talking about it to someone who understands and is in the same position really helps. Best wishes Lynn