11 Jul 2023 Always be good to yourself - My MSAA Community

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11 Jul 2023 Always be good to yourself

RoyceNewton profile image
6 Replies

G'day Relapsing-Remitting ms (RRms) family. This is not your fault. TOU did nothing to deserve this. This is something that can happen to Homo Sapiens. YOU, my sibling, are a Homo sapiens. Cherish yourself. YOU can have a long boring life if YOU make it that way. Make that effort, Make your RRms, as dull and boring as possible. There will be unexpected obstacles. Shake them off, wipe away any tears take a deep breath and just carry on. Remember, a long steady boring life.

Be kind to yourself and always remember YOU did nothing to get this illness and to take your Disease Modifying Therapy (DMT), OCREVUS.

Royce

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Xvettech profile image
Xvettech

hello Sir. Thank you for your very inspirational posts.

I am very happy to hear that the Ocrevus is working very well for you. I can not be on Ocrevus because I have some gene that causes cancer. I am on Kesimpta instead. It also works well. It has taken the pain away :). (Just wanted you to know)

RoyceNewton profile image
RoyceNewton in reply toXvettech

You do the best that you can yourself.

This is one of the toughest mental challenges I personally struggle with. Thanks for the reminder!

I think because we do not know what causes it. It is an unknown which is really difficult,. I think, wanting to blame something or someone makes it easier for us to blame ourselves even if it’s not true.

RoyceNewton profile image
RoyceNewton in reply toGoldilockssearching

look at it as a Homo Sapien disease and YOU are a Homo Sapien, so luck of the draw we got it. This is NOT your fault. YOU did nothing wrong, believe that.

Tazmanian profile image
Tazmanian

I'm trying to get my Ocrevus but my insurance company thinks my neurologist is a miracle worker and I might not need it anymore hahaha

RoyceNewton profile image
RoyceNewton

try Genentech assistance program.

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