24 Apr 2023 Do not be scared you are o... - My MSAA Community

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24 Apr 2023 Do not be scared you are okay.

RoyceNewton profile image
11 Replies

G'day my Relapsing Remitting ms Sisters and Brothers. I am serious, You are going to be okay. Right now this disease seems overwhelming, beyond your ability to cope. IT IS NOT. Slow down, and stop for a minute or two. It is going to be okay, YOU are going to be OKAY. YOU, like me, are sick now, and forever more. YOU like me are going to have this illness until the day you die, that is barring any medical miracles, and YOU like me CAN and WILL live a long and mostly full life despite of this illness.

Do not hope for a cure, that is unlikely to happen. Hope within yourself that YOU find the strength, determination, the bloody-mindedness to make this illness act a little on your terms. Your first decision, take Ocrevus. Eat healthy and exercise and stretch. Take a sedative before a Magnetic Resonance Image (MRI) session. Keep good records. Start an RRms diary. Write down dates and what procedures YOU had done.

Relax, and feel free to cry. We all at some level do it is okay.

YOU ARE GOING TO BE ALRIGHT, DO NOT MAKE ANY RASH DECISIONS. Your spouse may abandon YOU, sadly that is the state of our society. Mine did but YOU are going to be OKAY.

Relax, take your time, YOU are going to be OKAY.

Live well, YOU are loved and cared about. Your RRms life has just begun. It will be full of downs and some ups but YOU can DO this.

Royce

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RoyceNewton profile image
RoyceNewton
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11 Replies
Allen5280 profile image
Allen5280

I am so far from ok its not even funny anymore. MS has stolen my LIFE, My Identity, almost everything I ever LOVED!!!! That is BS cause with MS there ain't no paved way... mine is TRYING to KILL me. It's not all the same Royce, while you voice is one that can bring hope please don't downplay our suffering from this madness, please.

RoyceNewton profile image
RoyceNewton in reply to Allen5280

I acknowledge your suffering but as I do not know it I can not speak of it. All that I can speak of is my life and give people the wish to NOT suffer as you appear to.

kwhompus profile image
kwhompus

I am so very. very tired of YOU reminding me and everyone else of all the negative effects of MS. YOU are the most clueless person I have ever encountered. YOUR thoughts serve nobody but the self absorbed YOU. GET help, consult a professional, show him YOUR scribblings and let he/she show YOU how to deal with YOUR selfish bring everyone down with me attitude. g'day mate.

RoyceNewton profile image
RoyceNewton in reply to kwhompus

Thank you for your very constructive input. It is nice to read your hundreds of letters of helpful ADVICE TO PEOPLE. Oh you do not, must be my mistake, have a nice day.

kwhompus profile image
kwhompus in reply to RoyceNewton

Why do YOU think that if YOU write a letter it's perfect? It is like an idiot writing a letter about nuclear fusion. I hope YOU are wearing a neck tie so YOU can pull YOUR inflated ,for no reason to, head out out of YOUR butt. Keep pulling until YOU see daylight.

whwiechm profile image
whwiechm

WOW! What negative responses! I have always viewed Royce's writings as sort of our own cheerleader section. I for one appreciate his writings and believe we must all try to be positive and do our best to combat this terrible affliction

RoyceNewton profile image
RoyceNewton in reply to whwiechm

Thank you very much, I understand that we are all different in most things including our outlook. I feel it is best to allow a stranger to be (my opinion) negative because I am not in their shows, but again thank you for your kind words.

Royce

whwiechm profile image
whwiechm in reply to RoyceNewton

With MS, there is enough negativity. As you have demonstrated, we need positivity and the will to keep fighting against it as best we can, and "cheerleading" may be the best we can hope for, and an encouraging word from someone with the same problem can mean a lot.

TeeKay408 profile image
TeeKay408

Wow. Thanks for writing an incredibly supportive message, Royce! I needed that today!!

Cheers, friend!

mm1527mm profile image
mm1527mm

Thanks for sharing this reminder. Today is my first appointment back at Ms center due to my pregnancy. Wasn't ready and a bit discouraged to have to get back to reality again but one day at a time. Ready to continue my ocrevus.

Tazmanian profile image
Tazmanian

Keep up the good work

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