20 Jun 2023 The day after: G'DAY my ms... - My MSAA Community

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20 Jun 2023 The day after

RoyceNewton profile image
9 Replies

G'DAY my ms family I hope YOU are all well and feeling positive about your life. The usual disclaimer. I am NOT a medical professional of any sort, what I say is from my experience nobody else, well maybe some of my wives, she does provide the female perspective of multiple sclerosis (ms).

Yes, yesterday went very well, Quite boring but boring is good. If YOU are new to ms, take Ocrevus. If YOU have had ms a while take Ocrevus. I sound like a salesman, well whatever. Do yourself a favour, take Ocrevus. For the first time in a very long time, I felt really positive yesterday. I felt I was doing something really positive for myself and my Relapsing-Remitting ms (RRms). Remember THIS is your life, not the doctors, YOURS. Get the hint? Do the best for yourself that YOU possibly can. If that means exercise, YOU do not have to join a gym to exercise. If YOU have to lose a little weight, surprise surprise eat less eat and maybe a little healthier. There are things that YOU can do. RRms (a littleRelapsing- Remitting ms) DO them and make your life better. Your life, remember this is your life so live it

The apprehension was my issue. I wouldn't say I like change, and any needles even less. I have an 80 year old Indian gentleman who normally does my needles. We call him the magic man because you cannot even feel him do it, so I am quite spoilt and nobody ever compares.

So it went well and I am fine, so go ahead and take Ocrevus, it is your life after all, be WELL and take care. Thank you all for your adviceand best wishes.

Royce

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RoyceNewton
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9 Replies
NorasMom profile image
NorasMom

I'm glad it went well! My family doctor is like your Magic Man. We have never felt any of her needles going in. I don't know how she does it.

Cwright170994 profile image
Cwright170994

I second your ocrevus comment! I was on copaxone for 5ish years, and in that time I'd picked up a number of lesions, and I lost my ability to walk too! But, in 2021, I started ocrevus, and I felt a new strength! I am back to being able to walk, even if it's only small distances, and when I had my last MRI, I DON'T HAVE ANY NEW LESIONS 🙌😁🎉 I'm a bit surprised I wasn't started on it earlier... but, oh well, that's the NHS for you. My neurologist had to argue to get me on ocrevus, and the fact I had to go into hospital after 3 seizures one night provided enough evidence.

RoyceNewton profile image
RoyceNewton in reply to Cwright170994

I am glad it is also doing week for you, typical cost issue I am sure. Stay well nd enjoy you're life.

Cwright170994 profile image
Cwright170994 in reply to RoyceNewton

I don't "need" to pay, I've got the NHS providing healthcare free at the point of use so far, unless the health secretary changes it to the US system 😡 he's really p*ssing people off now, with doctors, nurses, and paramedics leaving because their pay isn't keeping up with the cost of living 🤬 but, at this moment in time, I'm good 🤞😁

Neworleanslady profile image
Neworleanslady

i ❤️ ocrevus

Tazmanian profile image
Tazmanian

Ocrevus is the best so far I'm waiting for a cure

RoyceNewton profile image
RoyceNewton in reply to Tazmanian

Cure, good luck on that.

Tazmanian profile image
Tazmanian in reply to RoyceNewton

I can always hope

twooldcrows profile image
twooldcrows

so glad your feeling good ...it does get better at least it has for me ...enjoy more,laugh more and giggles are all free ...ahhahahhahahah love and happiness are free also....hahahha...🥰🥰🥰🥰🥰🥰🥰

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