12 Jul 2023 Newbies DO NOT PANIC

[RoyceNewton]

G'Day Relapsing-Remitting (RRms) family. Welcome to my Wednesday. Out of curiosity do YOU know where the days of the week's names come from? Something to take your mind off what has confronted YOU. Your life with ms. As I said DO NOT PANIC. Have a cry (I did) and make your decision about which Disease-Modifying Therapy YOU want to take. YOU DO want to take one. There is no cure as yet, so do not search the internet for one. YOU will, everybody does and that is cool. Here are some clues YOU might want to look for.

1 Repeatability. Is it one of those miracle cures or do lots of people do it for little financial cost

2. Why is big pharma not selling this? They have the money and with around 2 million of us worldwide a cure is very sellable.

3. Take the strongest legally available. If, for whatever reason YOU can not take it go to the second most, then the third etc. Do not be afraid of needles (I am) they are part of your life now.

4. YOU get the hint. YOU will look for a cure but be very suspicious of what YOU find Okay, I am NOT any kind of Medical person so what I say is based on my experience and observation. My personal tourney has been since 1998 and my wife is two years longer, so a little experience.

Keep notes, and find a good neurologist that YOU can talk to. YOU will have some very personal problems and YOU want to be able to talk about them. Bowel, bladder, erectile dysfunction, lack of genital sensitivity, moisture. YOU get the hint. They may not happen to YOU, but can YOU talk to your doctor if it does?

Enough doom and gloom. It is not all bad. Yes, it does require some changes, but nothing that YOU can not handle. There is a lot more to YOU than YOU might realize. Go forth and do your absolute best whatever that may be. Make mistakes, find solutions and do your best for YOU.

YOU CAN DO THIS and crying is allowed.

Royce

[Cwright170994]

I like reading your posts every day! It brings a smile to my face 😁❤️

[JSSimp]

Great info. Thanks🙏🏾

[AquaZumbaFan]

I think you give really good advice… I wish you’d been around when I was a newbie

[Swanberg]

Yes, life with MS is an interesting journey. With my rheumatoid arthritis and Cyclic Vomiting Syndrome (subtitles added in) , I really cannot predict what tomorrow will be like. I actually could become a TV weatherman!! Chances are the reports will be 50%rain/50%sunny. I have learned to go with the flow every morning I wake up. I have symptoms of my RRMS with fatigue being my #1 symptom!! Then there are rare days when I wake up to jerky leg movements lying in bed in the morning and I know I will be best served by taking the day off and being sequestered to my bed. Adjusting plans you had for the day is part of the game. I have missed Christmas with family due to MS or my Cyclic Vomiting a couple of times now. You have to just be able to say you roll with the punches. For those of you more severely affected my heart💕goes out to you, as your day to day life can be a struggle more than I face. But believe me I do get scared the very rare day, where I am walking fine and without warning my knees give out and I lay in a puddle on the floor. That is what scares me!!!! At that moment my mind is flooded with worries of what tomorrow may bring. I gather myself up, which can be difficult with my arthritis and the few extra pounds I would like to say good-bye to, but it can be energy consuming and difficult in and of itself. We are given today, so let us be aware of what we have for each day. Let us not worry about tomorrow, as it has not been given to us yet. With courage we all can help one another with strength, positive thinking, love and support!❤

[RoyceNewton in reply to Swanberg]

Very well said. I send my condolences for what they are worth. I hope you continue your journey and hop for the best for you. Keep being strong.

Royce