Ampyra

[AngieRowe]

Anyone on Ampyra? Does it help you with walking? I started a two month trial. Only been on a few days. FYI: the company will give you a two month trial if your doctor requests it. They also have an assistant program. I understand the cost is $2,000 or above a month.

[JeenaRae]

Hi Angie

I start my trial later this month after I do my bloodwork. I know someone who is on it that has had good results. I hope you do well!

[AngieRowe in reply to JeenaRae]

Hi

Let me know how u do! I think I can the difference already but I'm afraid to say that yet because I'm not sure if it's true or it's my imagination!

[JeenaRae in reply to AngieRowe]

Will do it'll be a few weeks before I start but I'll keep u posted

[ddeadred]

I've been on Ampyra about 6 months and LOVEIT!!! I can tell when it's time for my next dose based on how when my legz are working. Mind you that after 30 years of fighting the MonSter, I'm really not easily impressed. I AM with this med.

At this point, I take meds morning noon and night along with shots of Copaxone 3x/week... I just figure that it's better living through chemistry!!! I think I've got all of my medswere they needto be after lots of trial and error over the years...

[AngieRowe in reply to ddeadred]

Hi,

It is hard to be impressed with the MS choices! I think I can tell difference but I'm going to wait at least a month to say so! I also do copaxone 3x week, My husband usually gives them to me (he said he doesn't like to give them but I think he really does😂😂😂😂. Thanks for info

[ddeadred in reply to AngieRowe]

I've always been on my own for shots whether Betaseron (8.5 yrs.) or Copaxone (up to 9 years)... Like Copaxone BEST as Betaseron tried to eat my leg (necropic tissue under my skin--shot went really wrong!!! Still, in 1994 it was the ONE AND ONLY CHOICE)... No, I'm not overly impressed with MS drugs though still walking 30+ years of battle!!!

[BillD999]

AngieRowe, I have been taking Ampyra for several years, since it first became available. I take it because it provides a clear benefit with nerve function in my leg (my most affected area) in terms of strength, coordination, sensation. I have experimented with not taking it and I see an immediate decline. I know that not everyone sees the same result but I recommend trying it.

There is a patient assistance program through the manufacturer: APAP - Ampyra Patient Assistance Program. If you contact them they will send you an application. Good luck!

[AngieRowe in reply to BillD999]

Hi, Thanks for info. I think I feel the difference but I'm going to take more time to be sure before announcing! My left leg is most affected and it does seem to be able to lift better. I'm soon to be on Medicare d and not sure how patient. Assistance goes with that.

[AngieRowe in reply to AngieRowe]

Thanks for info👍

[johnMSAA Partner]

Just chiming in here, AngieRowe ... BillD999 is correct, and here is the direct info:

Phone: [phone]

Website: ampyra.com/cost-patient-ass...

Best of luck!

- John, MSAA

[AngieRowe in reply to johnMSAA]

Thanks for the info🙏

[mayestas]

I am on ampyra and I think it works also I believe you can tell buy the first pill. It's one of those that work right away. Good luck with it.

[AngieRowe in reply to mayestas]

Hi. Thanks for info. I think I noticed quickly too! But thought people who think I'm crazy! How long have you been on?

[mayestas in reply to AngieRowe]

I have been on ampyra for about two years and I also have the co-pay assistance and pay $40 a month.

[Amore55]

Angie, I have been on Ampyra for 18 months. It has made a huge difference for me. Before I was on it I took 16 seconds to do "the neuro test walk". After I got on it the next month I did it in 4 seconds! I got on the co-pay assist and pay $40, instead of the $180 it would have been. My husband makes very good money, so was pleasantly happy I qualified.😁 I hope it works as well for you. Kelly

[AngieRowe in reply to Amore55]

Thanks Kelly, They said I could be assistance and it would be $40 as long as I have blue cross as primary. Not sure when I go on Medicare part d! It's not as easy then, just as it with my copaxone. I hope they have something that will work with part d to pay the first month when I would go in 'donut hole'. I'm hopeful it will work. Thanks again for info.

[SueAB]

AngieRowe, I tried Ampyra for several months. Yes, the drug company does have scholarships and your neurologist should be able to help you get this paper work. I have a low tolerance for most drugs and it made me feel drunk and my balance was worse. I know Ampyra has helped many people and if you can get the med for free, I would give it a try, if I were you.

[AngieRowe in reply to SueAB]

Thanks for the info Sue. Sorry it did not work for you. 🙏🙏

[Mariana668]

Angie, I have enjoyed on Ampyra for about 4 years. I think it helps. 2x a day After first month i noticed a difference. I saw you or someone say something about co assistance on medication. Few loops to avoid

1. Your doctor is going to need a pre authorization for Meds. You get them from your insurance company's mail in pharmacy and you don't want to be doing well and miss any bc of this ... happened too many times!!!

2. The company that makes the drug has awesome funding. They basically pay for meds, you'll need to fill out forms but they are awesome... in beginning before deductible was met it was $40 copay now it's free!!

Just make sure all this is in order before you start to feel good and then wait. Good luck !!!

[AngieRowe]

Thanks Mirian,

I really have noticed a difference and I have just been on them for a short time and my sister said today she could tell that I was walking better and she did not know I was on new med!

[RobertCalifornia]

I take Ampyra but only in the am. If I take it in the pm I have really crazy dreams. Have enough problems with sleep. I have been diagnosed with PPMS so I don't know if Ampyra is helping. I probably will stop in October when. I go on Medicare. They don't cover much of the cost.

[AngieRowe]

Hi Robert,

Thanks for the info. I have the Medicare issue coming up too. How does that work? I am concerned about Amprya and copaxone too?

[mdok]

I have been on Ampyra for over 3 years now. It does make a difference in walking speed, even on my bad days. I hope you have good results with it.

[mayestas]

You should notice Improvement on ampyra within the first two days

[Kryptonian]

Hi I'm Aaron, are still taking Ampyra? I've taken it before and was curious to see if you're faring better than I did.