Experiences with

Dalfampridine

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is now being used around the world. As I understand it, it is approved for Wales and Scotland but not for England.

I received my prescription of dalfampridine from usps in an opened package with a piece of packing tape from usps that says received in damaged condition (the package). I am unsure whether or not to trust it.

I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?

so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I haven’t had a relapse x the 1980s and after skipping 1

Today i forgot to take my ampyra/dalfampridine until the afternoon so i was stiff like a board in the morning. so here i am trying to find the good in life. Feel free to share what you're grateful for.

saw Neuro yesterday. She’s prescribing Ampyra. I’m hopeful 🤞 but wondered what others experiences were? What benefits, side effects? Insomnia? Thanks! 😊

hi group! i could use some support around this issue. My insurance refuses to pay for this mediclne anymore so it will have to be appealed. I think/believe it is retribution because they had to pay for my mavenclad (we won the appeal) am i being paranoid? Anybody have a stash of Ampyra you're not using

I have spoken to my neurologist about being put on Dalfampridine even if I have to fund it privately. I understand that it is in a class of medications called potassium channel blockers which work through strengthening the signals from the brain to the nervous system.

Has anyone ever eaten dalfampridine? How does it work

Here is the kicker the generic name is what the pharmaceutical company currently calls it now dalfampridine. They just dropped the name Ampyra and changed the color of the pill.